Been on 6MP for over six years now. Unfortunately, it does not keep me out of flares. For the first years on it, it did keep me symptom free a few years at a time but now the flares occur yearly and this is the second flare in only being in remission for seven months. I had to go back on the prednisone too and been on it since June 11th, 30 mgm at the present time with 100 mgm of 6MP. This is the highest dose my doctor has had me on the 6MP EVER. I also have been taking Colazal faithfully as a maintenance drug (11 yrs of UC), Cort enemas nightly and Canasa suppositories in the morning.
Make sure your doctor carefully monitors your white cell count as mine dropped drastically when on only 75 mgm of the 6MP...down to 1.4. He cut the 6MP down to 50 at that time but the white count bounce back to 4.0 and the doctor thinks that may have been the culprit for this flare.....body attacking its own immune system. I will never understand this disease.
Seeing a GI specialist on Sept 24th over at the Univ of PA hosp in Philly as my doctor has expired all his treatment methods for me. Remicade is not an option and at my age and other health issues, surgery is extremely risky.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.