UC for 4 years, pretty resistant to medications. Prednisone was no longer acceptable to me. Weekly Humira made me feel like crap and didn't work long enough at all. I'm 24yrs. old Male at about
230lbs pre op, ~220 post op it seems, lost somewhere around 7-10lbs maybe, mostly from the colon I'm sure. Looking forward to going home and throwing out my Humira and shoving my prednisone deep back into the shelves never to be looked at again. Feel free to ask me any questions, nothing too personal for me here. I felt like there were a lack of positive reinforcement threads on the internet about
the surgery, and FOR ME the surgery hasn't been a big deal, I'm already up and walking and feel 100% not even a week after the surgery. I've already been able to eat hamburgers and everything just fine.
I just had surgery 6 days ago. Today I've been unhooked from my IV so now I'm pretty mobile. All I have left is the removal of inflammation tube and pouch which is collected fluid, then I can go home with my colostomy bag tomorrow. I was up and walking around either the next day or the day after the surgery. Pain was never really an issue, just trying to get out of bed the first 3-4 days was a tender situation, walking wasn't bad though. Personally I thought the surgery was a breeze... but I'm still pretty young (24) and was probably not in as bad shape as many who turn to surgery were. Walking in for the surgery was probably one of the hardest parts, getting into the gowns, slippers, and the hat etc. is kind of scary, but they put you on some good drugs and when you're rolled into the operating room you're really at ease and feeling good, then they totally black you out which I can't even remember happening. I just remember then asking me about
my job for a bit and then I was out. They woke me up in the operating room after the surgery which I don't remember, but I do remember them telling me to wave to my dad as I was wheeled past the waiting room into recovery. One of the worst parts for me was the pee tube catheter and being woken up many times a night for IV change, catheter changes, etc. Other than that I feel great today and actually feel like I could go back to work tomorrow if I wanted to... but I will probably wait at least another 3-4 days if they even let me go back so soon. The bag doesn't even smell like normal stool, doesn't smell great but that's just during the bag change, and I'm not sure many people would even recognize the smell anyways, since it smells different than typical poo, at least for me. Prednisone, Humira, etc. taken in high enough doses are pretty bad. I can't say I've regretted my decision 6 days out so far, and things are only getting better, bag will be removed in ~2 months and I feel fine. For me the surgery seems to have gone 100% as planned though, so I don't know what it's like if things go bad. I had my surgery done at UCSF medical center and can't complain so far. I had UC for 4 years, and was taking weekly Humira but stool frequency increased and I had to resort to prednisone again. I don't think that's really a road people should go down for very long. Even having a permanent bag I could probably deal with (I'm probably more conscious of body image than most males and so far I don't even really care about
having the bag much for some reason...), but I'm betting once my J-pouch is connected it should work pretty smooth. The ostomy can be pretty loud at times when it's spitting out waste, but it seems to only last for maybe a 5-10 minute spurt and then slows or quiets down. Only notice this a couple times of day, maybe in the morning or everning. I've only had it functioning for 4-5 days now too, so it should slow down and probably get quieter too. The first ~2-3 days after surgery there was only inflammation fluid that came out into the bag, and then with a liquid diet the ostomy started producing waste maybe around the 3-4 day for me.
I was on prednisone for a few weeks before the surgery, and was down to 2.5mg or so only a day or 2 before the surgery. They actually wanted me to keep taking it up until the day of surgery but I quite taking it a day or 2 before. They put you back on after or even during the surgery anyways, to reduce inflammation post surgery. Today I'm switching to oral prednisone for hopefully just a few days until the inflammation is down enough. Up until now I've been taking corstisone or something liek that through IV, something related to prednisone or maybe the same type stuff. I was also on weekly Humira just and stopped just a couple weeks before my surgery.
Post Edited (qazwsx12) : 7/27/2009 5:41:30 PM (GMT-6)