Finally Getting better!!!!

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Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 7/27/2009 9:51 PM (GMT -6)   
Hi everyone!
  I'm finally getting better..   I was just reading some other posts, about people who have tried prednisone and had horrible side effects. I guess I'm one of the lucky ones.. My only side effect that I can notice that bothers me a bit is my sleep is pretty much non-existant without sleeping pills.. but other than that, it's actually helped me feel better! I have so much more energy and am able to stay on top of things.
  I guess the downside is the stuff I can't see... like bone thinning and whatever else it does to you.. I'm currently on 50mg until I see no blood for a few days... then I can go down to 40mg until my next GI appt on the 18th..   At the rate I'm going, I should be able to drop down to 40mg in another 2 or 3 days. I've had hardly ANY blood, except for a tiny bit on the TP..  no more filling the toilet bowl with blood like I was for sooooo long...
   I'm also taking that new drug Apriso.. I hope it can keep me in remission while I taper, or my next step is Remicade... Argh.. scary thought..
   Just thought I'd update you all that I'm FINALLLLLLLY seeing an improvement.. only took 4 weeks of Pred..  I sure thought it would work faster than that... but maybe adding the Apriso 2 weeks ago is part of it... (I HOPE)
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that) with NO BLOOD!!! First time in almost 10 months!!!!!!!
Meds are: Prednisone 50mg daily, Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Which is every day and night with all this darm PRED..
Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...

Elite Member

Date Joined May 2003
Total Posts : 31006
   Posted 7/27/2009 11:48 PM (GMT -6)   
That's truly a relief you're starting to feel better. Hope it continues!
Thanks for the update Susie...
H xx
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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