Hi..welcome to the forum!
It's awesome you got through bouts of flares with minimal disruption to your life..not all of us has that priviledge.
But, things do change with the course of the disease and some can get worse to the point of having refractive disease where no meds can control it...reason difficult to determine.
I would suggest you ask the doctor for rectal 5-ASA meds as well and use them in conjunction with the Apriso to get the inflammation controlled. You can taper them to a maintenance level.
5-ASA meds are believed to help with the prevention of cancer as well...I believe it's because of keeping the inflammation down as best as possible. Of course, some cannot take them.
I'm hardcore 5-ASA meds, both oral and rectal...have been for 20+ years and dread the day they stop working for me.
Please reconsider....but if you go down the path of least resistance regarding why you don't want to use them...that's the way you'll go.
Give them a chance at least. It's still a first-line med, and if you consider the alternatives, you may want to do more research on the meds and clarify your reasoning.
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 7/28/2009 2:48:39 PM (GMT-6)