I live in Bellmawr, NJ (exit 3 of the turnpike). I have a regular GI doctor whom I have been seeing since being diagnosed eleven years ago. He just referred me to a Dr. Liechenstein at the Univ of PA hospital in Philly because my doctor is at the limitation of treatment for me. Seems my flares are occuring more frequently (ulcerative proctitis). Currently I am taking 25 mgm of prednisone (tapering from 40 mgm at 5 mgm per week), 100 mgm of 6MP, Colazal (nine capsules daily), Cort enemas nightly and Canasa suppository in the morning. I seem to be getting better but slow process. The side effects of the prednisone and 6MP are horrible...insomnia, heartburn (taking Nexium while on prednisone), extreme fatigue.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.