I saw my doctor again on Tuesday. I have had my 3rd Remicade infusion, but I am still not doing a lot better and the bleeding is coming back. I have a colonoscopy scheduled for August 19th. My doctor said if things don't look too bad, we will increase the Remicade dose and if things do look bad, he is referring me to a surgeon. I am so disappointed that the Remicade is not really working. I don't think I can actually have the surgery. I have a 3.5 month old baby, school starts again at the end of August, and I have an internship. I won't have any time to do it. My husband is going back to school, too, and we can't afford for him to take off of work to help with the baby.
The good news is my blood sugar is normal after getting down below 20mg of Prednisone (I'm taking 5mg now so I will be completely off it in a few days). I have to start taking iron again because I am anemic and my heart rate was quite high from that.
I'm really starting to feel more sick again. I have no appetite and I am feeling nauseous again and I am cramping quite a bit.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success
Post Edited (pam222) : 7/30/2009 12:00:15 PM (GMT-6)