My GI had me on 50 mgm of 6MP but my white count went up to 4.0 (normal limit) and I started a flare. He started me on 30 mgm of prednisone but that did nothing, so he increased the prednisone to 40 mgm with a 5 mgm per week taper and increased the 6MP to 100 mgm. This was the 11th of June. I also take nine Colazal capsules per day, Cort enema in the evening and Canasa suppository in the morning. I experienced about four episodes of very bad heart burn....felt like someone punched me in the upper stomach and pain radiated into my back. All four times I was sitting here at the computer. Relief came when I stood up and walked a bit. The doctor then told me to take Nexium every morning and this has given me great relief.
The only thing I don't like about this increase in dosage of the 6MP is that I feel very tired and have a metallic taste in my mouth. I've been on 6MP (never this high of a dose) for six years. I have ulcerative proctitis and (keeping my fingers crossed) am starting to go into remission.....no blood, formed bowel movements and no urgency or pain the last few days.
My bilirubin was a bit high and yesterday I had an ultrasound of the liver, pancreas and gall bladder to rule out any underlying problem as to the upper gastric distress. Next week I go for tons of blood tests...soooo, we'll see.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.