Trying to find what works.

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New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 7/30/2009 10:42 PM (GMT -6)   
Hey everyone, I recieved the wonderful news that I have UC in May of 2009. They put me on Asacol ten pills a day but that did not stop the bleeding so they put me on Prednisone taper for five weeks which was awesome felt normal until I was off, and then back to constant diarrea. I got anywhere from 5-10 times a day and I'm getting super bummed. Any suggestions ?

Elite Member

Date Joined May 2003
Total Posts : 30971
   Posted 7/31/2009 3:40 AM (GMT -6)   
Hi..welcome to the forum! Love the "super bummed"!

I would like to have seen your doctor put you on rectal meds in conjunction with the Asacol...long before even thinking of pred.

Are you going back to see your doc soon?

Are you still on the Asacol?

*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 7/31/2009 8:44 AM (GMT -6)   
I'd ask your doc if you could try another ASA med. Many people have problems with asacol. I take the older drug azulfadine (sulfasalazine).
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 7/31/2009 10:49 AM (GMT -6)   
Ditto what quincy and princesa said. You might need to try a different ASA as different ones work better for different people, but I also think you should be on a rectal med. I had a really bad first flare (15-20 BMs/day at my worst) and almost got into remission using Asacol and Rowasa (mesalamine enema). Then I got a tummy bug, which threw me back into the flare. As I had a big interview coming up and HAD to be well, my doc prescribed a pretty quick course of pred, which luckly, worked. I stayed on Asacol and Rowasa the whole time.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

Veteran Member

Date Joined Mar 2009
Total Posts : 1439
   Posted 7/31/2009 10:51 AM (GMT -6)   
I agree, try doing combination oral/rectal 5-ASAs. Also, try fish oil and probiotics.
22, female, diagnosed 3/6/2009, symptoms for 2 years beforehand
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (1200 mg 3x/day), Rowasa and Calcium/D supplements

New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 7/31/2009 12:00 PM (GMT -6)   
Hey thanks for the feedback much appreciated. Yes I am still taking the Asacol and I honestly do not think it works for me. I also have rectal stuff called Canasa that I use. But I will be honest I have not used it consistently. I would like to try a different type of 5 ASA.

My DR said it was normal for people with UC to have 4-6 bowel movements a day. Sometimes even with blood mixed in. My recent blood work showed things to be normal and my stool sample showed no inflammation so my DR said I was in remission. BUT how can I be in remission and have 7-12 bowel movements some with blood a day. NOT POSSIBLE.


Veteran Member

Date Joined Jul 2008
Total Posts : 823
   Posted 7/31/2009 12:06 PM (GMT -6)   
I have never heard of being able to determine inflamation from a stool sample...often my blood work looks normal when I am inflamed...with your symptoms it does not sould like you are close to remission to me...
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily

New Member

Date Joined Jul 2009
Total Posts : 8
   Posted 7/31/2009 2:38 PM (GMT -6)   
the diarhea is in agony everytime I eat something.....had my scope done and after that before i went home the doctor said i had colitis but not sure what type....I go wed to find out his plan for me....i've been to the health shop today and got me some things to try and help....hope you can get it under control.

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 8/1/2009 7:16 PM (GMT -6)   
I used to feel the same way, that everything I ate made things worse, that was until I started eating only anti-inflammatory foods when flaring and adding turmeric to everything. After that, eating actually helped reduce the inflammation.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).

Regular Member

Date Joined Oct 2007
Total Posts : 486
   Posted 8/2/2009 1:12 AM (GMT -6)   
Going 7-12 times a day with some blood is not normal. If this is what your doctor calls Remission, I'd hate to know what a flare is like!

If you're not using the Canasa consistently, you should try other rectal meds until you find one that you can bear to use every night until the bleeding stops, then taper.

Oral meds alone have *never* stopped the bleeding for me. (My inflammation is lower 10 cm)

It can take a while to find which drug combo is best for you, so don't get discouraged.
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam, Lomotil
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy

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