Experience with Entocort

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wodin
Veteran Member


Date Joined Jul 2009
Total Posts : 526
   Posted 7/31/2009 12:02 AM (GMT -6)   
I was diagnosed with UC a couple of years ago during a routine colonoscopy. At the time I was asymptomatic, and my IG didn't prescribe any treatment. After several months of that, I had a serious flare. I didn't think it was possible to get so sick and not die, but after a few days of tests I was finally prescribe prednisone, and went into remission after a few weeks. I was on sick leave for five weeks, but could have cheerfully returned to work after a little over three, but they wouldn't let me return without a release, so it was five.

The IG put me on Asacol, and I stayed in remission except for a couple of minor flares since then. When I had my first minor flare He prescribed Entocort instead of prednisone and that worked with very many fewer side effects than prednisone, but it seemed a little less effective.

I have currently begun to flare again, and it seems like it might be a bad one this time. I was wondering if anyone here can relate their experience with Entocort verses prednisone. I have determined that I will begin a regimen of steroids tomorrow, but am wondering which one I should use. I have a supply of both, as well as an open prescription, so I could do either.

I really hate the side effects of prednisone, but I'm not sure if I may need the extra efficacy this time.

hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 7/31/2009 7:11 PM (GMT -6)   
When I use Entocort I am fine for about 2-3 weeks then I start flaring again and have to take pred... so my feelings are it isn't as strong but some people do fine on it and it is "less bad" for you than pred so I always try it first...
Jessica 27/F
Remicade, Entocort 3/day, Rowasa ,
Apriso/4 pills
Citalopram 20 MG
Align


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 8/1/2009 9:13 AM (GMT -6)   
I love entocort. I have always reached remission with it. It usually takes at least 3 months,but it is worth it with less side effects
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/1/2009 12:19 PM (GMT -6)   
Entocort did very good for me. But, I had to be on it so long it drove me nuts after a while (that was due to my own mistake and before I found this board, and before I found out that you should taper the steroids!). I refuse to take Pred....so that was my choice.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 8/1/2009 4:02 PM (GMT -6)   
How are the side effects with endocort vs prednisone orally? Do they seem lessened? I took oral prednisone and did very poorly with side effects and ended taking time off from work. Cannot afford to do that again. However, I am concerned since endocort is a form of prednisone that is suppose to release in the bowel.

wodin
Veteran Member


Date Joined Jul 2009
Total Posts : 526
   Posted 8/1/2009 6:50 PM (GMT -6)   
psychocolon said...
How are the side effects with endocort vs prednisone orally? Do they seem lessened? I took oral prednisone and did very poorly with side effects and ended taking time off from work. Cannot afford to do that again. However, I am concerned since endocort is a form of prednisone that is suppose to release in the bowel.


I find the side effects of entocort to be much less than prednisone, but it's still a corticosteroid drug and is not entirely without side effects.

First Diagnosed Feb 2007
Significant flare June-July '07 treated with Prednisone
Asocol X 6 per day
Largely in remission with some minor flares treated with Entocort
VIEW IMAGE

Post Edited (wodin) : 8/1/2009 6:07:43 PM (GMT-6)


rthepp
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 8/3/2009 7:11 AM (GMT -6)   
My daughter (14), was on prednisone for 7 months and had horrible side effects. The Dr. switched her to entocort and she has had no side effects from it. It has really helped her. She is now down to taking 1 pill a day, but took the full dose of 3 pills for over a year. We have been trying to get her off of it for awhile, but I am scared to cut her off as it really seems to help. When she has occasionally missed a few days she has seen a little blood and then she goes back on it and in a day or two is fine.  It is definitely better than prednisone though as far as side effects. Not sure how it would work on a bad flare as my daughter was doing alot better when we switched.   This is just an awful disease!
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