Well, to put it in a perspective you might get....I just went 2 weeks with this past flare that was pretty well under control in 5 days after starting the enemas nightly again. I was at every 4 nights...but had a mental/emotional crisis during a period of time preceding and during the start of the flare.
My symptoms were extremely MILD...but with definite inflammation because I had my doc take a look this time. I did have bleeding with this one only after multiple bms on the 3rd day of the flare, but no evidence at the visual inspection, which was good from my perspective.
I usually would stay at nightly for at least 3 weeks anyway....but hurried this one. May be a mistake which I'll find out later.
So, the point.......a doctor should never threaten you with short term slow working meds to have you hurry the process and then force you onto pred. You can say you'll do a year with 5ASA oral and rectal if he'll do the prescript
ions because you've never given it a fair chance. With the year I mean treating and tapering to find a maintenance dosage that can work for you.
You can also say that you've read that twice a week enemas is a good maintenance based on some studies, and that's what you're willing to try.
In the 20 years, even at my worst, my doctor NEVER suggsted pred. Another doctor did to whom I replied I was grateful he wasn't my doc.
Once I had to use the enemas for 4 months nightly....my doc's response was that if there's nothing else going on as per the stool samples I had done during that flare, I was to be patient. I was, and eventually things levelled out.
I've had lots of emotional ups and downs. Depression really slays me...more than the UC, and issues truly affect me while figuring them out. I'm grateful to have an awesome husband of 30 years and a great doc. If only I could just stop my mind for a while, them my butt would hopefully follow suit..lol!
Anyway, while pred is a miracle med, I don't believe it's really a long-term thing for flares with UC. If you can do the 5ASA route and be patient without any side effects, it will be helpful.
Some see it as a treating a symptom, but I see it as more than that...if I'm still cancer-free and without other issues including PSC exacerbation...it's a good thing.
Again...hang tough. I hope you can say to your doctor you're willing to try the 5ASA in a fair and continual manner as long as he prescribes refills for the enemas.
It's an experiment for YOUR future.....it might pay off.
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!