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Mercury28
Regular Member


Date Joined Jul 2009
Total Posts : 170
   Posted 8/2/2009 1:06 PM (GMT -6)   
Is anybody else on this site, worried about colon cancer? Do you all have regular colonoscopies?

I have been feeling really negative about my colitis the last few months, my symptoms have been really flared up, no meds are working, my diet fell apart, and i am so worried because i only weigh 98Ibs.

I need to stop worrying so much, which is easier said than done confused
Ulcerative colitis for around 15 years (Im am 28 years old now)

15 years of untreated colitis

I am taking Asacol foam enemas 2 x a day

Calcium 3 x a day for osteoporosis

Actimint pre and probiotics 6 x a day

My biggest concern BOWEL CANCER :O(


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/2/2009 1:49 PM (GMT -6)   
No, I'm not worried about it. I've only had one c-scope so far, but I was only diagnosed in January. I think my doc does them every other year until the 10-year post diagnosis mark, then every year. I might be wrong, though. The reason I'm not worried is because our incidence isn't all *that* higher than that of the general popluation, and because we have more regular c-scopes to check for it. I also plan to stay on mesalamine drugs, which are believed to to decrease the risk of UCers developing colon cancer.

I really think you should find a therapist who specializes in chronic diseases to help you work through your issues.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Mercury28
Regular Member


Date Joined Jul 2009
Total Posts : 170
   Posted 8/2/2009 2:28 PM (GMT -6)   
I think if you have had this disease for a longtime like myself and you were unable to take medication then you maybe more concerned.

I am not so sure I need therapy, I think that I am long overdue a bowel exam and maybe that would give me some piece of mind.

Still can't take meds though so I am now using the heal your gut book by jini patel Thompson which is all about healing using completly natural suppliments and diet. So this either works for me or it's surgery.
Ulcerative colitis for around 15 years (Im am 28 years old now)

15 years of untreated colitis

I am taking Asacol foam enemas 2 x a day

Calcium 3 x a day for osteoporosis

Actimint pre and probiotics 6 x a day

My biggest concern BOWEL CANCER :O(


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/2/2009 3:11 PM (GMT -6)   
I would say that having colitis, especially since I don't know how long I've had it, means that I'm at a higher risk for colon cancer; so, yes, I am more worried about getting colon cancer than before I was diagnosed. However, I'm not that worried.

I'm also at a risk for breast cancer, because my grandmother had it. I don't think she breastfed, and I believe she was on the pill. So, again, I'm not too worried. But I am more worried about getting breast cancer than colon cancer. I think my risk is higher.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/2/2009 3:22 PM (GMT -6)   
Maybe if I were unable to take any meds, I might be a bit more worried. But, I don't think I'll be any more worried about it in 20 years (assuming I haven't had surgery). I don't worry about things that are out of my control, and whether or not I develop colon cancer is one of them. Yeah, there are things one can do that might decrease the chance, but in large part, there's not a darn thing that can be done. Getting regular c-scopes is the best way to find colon cancer at a very early stage, so I plan on doing that.

The reason I asked about therapy is because you've made numerous posts where you mention how worried, etc you are. I suffered from postpartum anxiety, and ended up seeing a therapist and going on Zoloft to control it. Now that I can look back on the weeks that my anxiety was uncontrolled, I wish I'd realized how bad my anxiety was earlier and how much it was controlling my life. I just don't want that to happen to others. So if you don't feel better after your exam, please consider it!

Like subdued, I'm actually more "worried" (even though I'm not worried about it...I guess the better phrase is "consider myself at risk for") about a different form of cancer...for me, that's ovarian cancer. My mom had it (and survived, thankfully!) at 30. It's such a hard cancer to detect, whereas colon cancer is relatively easy to detect.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Mercury28
Regular Member


Date Joined Jul 2009
Total Posts : 170
   Posted 8/2/2009 3:57 PM (GMT -6)   
Maybe I do need some kind of therapy or somebody to talk to as I am having a hard time getting my head around this disease. The last month I have been feeling really depressed and thought my family would be better off without me, it's like it has complete control over every aspect of my life and I have just given up.
Ulcerative colitis for around 15 years (Im am 28 years old now)

15 years of untreated colitis

I am taking Asacol foam enemas 2 x a day

Calcium 3 x a day for osteoporosis

Actimint pre and probiotics 6 x a day

My biggest concern BOWEL CANCER :O(


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/2/2009 4:46 PM (GMT -6)   
If you're having thoughts like that, I think you definitely need to see someone. You should NEVER feel as if your family would be better off without you.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/2/2009 8:03 PM (GMT -6)   
I guess I'm a little more worried than I was before, but at the same time, if I have to get a cancer I hope it's that one. Because if it's just in my colon, they can take it out, no UC no cancer left lol.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine every other night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 8/2/2009 9:26 PM (GMT -6)   
I was in the ER last week, and the 2nd doctor who came by suggested getting a colectomy because we have a higher probability of cancer. However, my GI, who I do not trust and is a little money grubber, says for Crohn's there is no surgery.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 8/3/2009 4:02 AM (GMT -6)   
Lexapro.
Jeff, 24, Diagnosed July 2007 probably had it since 2005 but no terrible flares till July 2007 *Update 3/25/08: Entire Colon UC*
Lialda - 2.4mg 2x Day
Perrigo 1x Every night
Centrum Multi-Vitamin 1X Day
Probiotics by Ethical Nutrients- Intestinal Care (Started Recently During a Long Flare Seems To be Working Wonders) 2x day
Probiotics by VSL #3 (trying it out at 2x a day now)
Slow Fe (Iron supplement)- 1x day
Lexipro- 2x Day 10Mg
In What I Would Call a Remission....As Close to Normal As It Gets


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/3/2009 10:59 AM (GMT -6)   
I agree, a little anxiety med might help you put your life in perspective. At least you could talk to someone about it.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


cdngrl
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 8/3/2009 3:16 PM (GMT -6)   
I am anxious just like yourself about colon cancer. I think during flare ups you think about it more, but it's also how long you've had it that gets stressful. I was diagnosed when I was 6 and I'm now 27, so I'm going on 20 years living with it...I used to get A LOT of bad flare ups and I really wonder how damaging it can be... I just recommend getting a colonoscopy every 3 years (my specialist recommended this for me) and from past experiences knowing what foods to avoid. I've started eating prunes (even just 3 a day) because I've heard it can reduce the chances of breast cancer (so I'm thinking it might work on colon cancer especially since it's working in the bowel so much)...honestly, since eating them regularly I was able to go from 9 asacol a day to just 3!! It's tough because it does make you gassy - which can be terrible during flare ups - but some how your body gets used to it and you're not even gassy after a month of eating them.  I used to only take 2 asacol a day, like 10 years ago, but this disease makes things different ALL THE TIME! Good luck, I know people who've had the disease way longer than me and they are still cancer free :) Just keep refering to these message boards, they're really helpful!!

Ulcerative colitis for 20 years

Meds:
Asacol x 9 daily
Multi Vit
Ferrous Sulfate (on occasion..)
Salmon oil capsules
Garlic Supp
Calcium
Vit D
Green Tea capsules

Last prednisone tapering regimine: September 2004


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/3/2009 5:35 PM (GMT -6)   
Mercury28 said...
Maybe I do need some kind of therapy or somebody to talk to as I am having a hard time getting my head around this disease. The last month I have been feeling really depressed and thought my family would be better off without me, it's like it has complete control over every aspect of my life and I have just given up.


Don't think like that. I too have had thoughts about suicide, but after having two family members commit suicide, I would never do it. I now know what it feels like to be on the other side. So instead of thinking about suicide, I now think about how I can support and help my family. I also try to think about positives and not deal on negatives.

I joined a positive thinking psychology group earlier this year. It was great. Each week we had a different assignment. We all felt happier from doing the assignments. These may help you feel more positive. Here are some of ones we did:

1. Three Good Things
At the end of each day, write down three things that went well that day and why you thought they happened.

2. Have a Good Day
Keep track of your activities each day, and at the end of the day, rate each activity and the day as a whole. At the end of the week, determine which activities are most meaningful and pleasurable. Try to reduce the time spent on activities that are not meaningful and pleasurable and increase the time spent on those that are meaningful and pleasurable.

3. Savoring
Once per day, take your time and enjoy something that you typically rush through. Briefly write down your experience in doing so.

4. Gratitude Visit
Think of a person to whom you feel very grateful. Write a letter to this person, telling them why you are grateful and then invite this person somewhere and read him/her the letter.

5. Active/Constructive Responding
Respond both positively and enthusiastically to good news from another person. Do this at least once per day to a person whom you feel close to.

6. Write Your Own Biography
Write a brief biography discussing what you would like to be most remembered for in life. Think about ways in which you can begin moving toward these goals in your day-to-day life and then carry them out.

7. Positive Service
Volunteer and write down your experience.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).

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