How to attain remission

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butterfly105
New Member


Date Joined Mar 2009
Total Posts : 15
   Posted 8/2/2009 8:49 PM (GMT -6)   
Hi everyone,
I found a really good site in which a guy explains how he cured his crohns and colitis..here is the website
http://www.crohnsboy.com/index.html

Be sure to check out the IBD Improvment document..its a life saver..

I myself am about to start the scd diet, right now i'm on pentasa (8 tablets a day), fish oils(pharmaceutical grade) and L-glutamine(5000mg/day)
I still have symtoms and am trying to find ways to attain remission. I've tried imuran but it didn't work for me.

Hope this website helps!

Another good website is
http://www.jinipatelthompson.com/

Mercury28
Regular Member


Date Joined Jul 2009
Total Posts : 170
   Posted 8/3/2009 12:14 AM (GMT -6)   
Healing the gut by mini patel Thompson is brilliant and well worth buying. Her diets are not quite as strict as the scd unless you do the elemental diet which is totally liquid.

What she says about prescribed meds is that you are merely supressing your symptoms, they do not heal the intestine. Her methods are about actually healing the damaged intestinal lining. Why wouldn't everybody try diet before taking strong meds that ultimately stop working in the end then you have to have stronger and stronger meds to keep it under control.
Ulcerative colitis for around 15 years (Im am 28 years old now)

15 years of untreated colitis

I am taking Asacol foam enemas 2 x a day

Calcium 3 x a day for osteoporosis

Actimint pre and probiotics 6 x a day

My biggest concern BOWEL CANCER :O(


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/3/2009 10:25 AM (GMT -6)   
There's really no evidence that the meds ultimately stop working. Yes, for a lot of the people on here they have, but this group is made up of people who are struggling or who have struggled more than the "average" UC patient, in my opinion. There are people like quincy who have used mesalamines successfully for 20 years. I hope I'm as lucky as she!

I didn't try diet first because I was so, so, so sick when I was diagnosed (15-20 BMs/day) and had a newborn and needed to get well as quickly as possible. I wasn't eating much, anyway, that wasn't allowed on the scd, just because I was so sick I had no appetitie.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 8/3/2009 10:53 AM (GMT -6)   
Interesting info - originally looked like a spam site, but he seems to be legit. I liked the picture of him peeing on the HOLLYWOOD sign.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/3/2009 11:13 AM (GMT -6)   
Good luck to you. Many of us have tried these diets and they did not work for us.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/3/2009 11:23 AM (GMT -6)   
There's also some pretty blatant misinformation on that site. He's talking about the sliver stuff (forget the full name) and how it's a "natural antibiotic" and kills viruses. Later on, when talking about it again, he said it works by depriving viruses (and fungi and bacteria) or oxygen. Viruses don't need oxygen. Nor do a lot of bacteria, and I imagine that quite a few of the bacteria that are capable of thriving in our guts are anaerobic.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/3/2009 5:58 PM (GMT -6)   
fruitgirl said...
There's also some pretty blatant misinformation on that site. He's talking about the sliver stuff (forget the full name) and how it's a "natural antibiotic" and kills viruses. Later on, when talking about it again, he said it works by depriving viruses (and fungi and bacteria) or oxygen. Viruses don't need oxygen. Nor do a lot of bacteria, and I imagine that quite a few of the bacteria that are capable of thriving in our guts are anaerobic.


Antibiotics have no affect on virus anyway. I hope its not promoted that way there, lol.

Colloidal silver is used as natural antibiotic. I keep some on hand, along with manuka honey, and pascalite clay, lol.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 8/3/2009 7:05 PM (GMT -6)   
Good luck with it. Quite a few of us on this forum have actually benefited a lot from following certain diets, so it's worth a try. I know there are some people here on the SCD or on carb restricted diets.

I think it's important to tailor the diet to suit your needs and lifestyle once you find what works for you, so that it doesn't become too difficult to follow.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/3/2009 9:28 PM (GMT -6)   
Dr. A, yes, it says that the collodial (thanks for supplying the name) sliver's antiobiotic properties kill viruses and fungi (and bacteria, to give him "credit")! Silly, silly, silly.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


butterfly105
New Member


Date Joined Mar 2009
Total Posts : 15
   Posted 8/4/2009 12:13 AM (GMT -6)   
I've actually tried the scd diet once before for a week, but didn't see results right away and was always hungry on the diet, so i stopped..but reading about Jay baluk( the creator of the website above) he said he didn't see full results til 6-7 months on the diet..so i think i'll give scd a 100% try once agian.

Fruitgirl wouldn't it be more fair to try the colloidal silver protocol and then criticize it..you never know it might work...crohns and colitis do have a bacterial/viral link to them (overgrowth of bad bacteria in the gut might be the problem) ..=)

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16712
   Posted 8/4/2009 12:21 AM (GMT -6)   
I have spent so much money trying dietary and herbal cures and nothing has even slightly helped my symptoms. I tried SCD diet for 3-4 months, I was buying all sorts of expensive ingredients. I tried herbal products, liquids, bitters compounds, walnut extract, teas, fermented foods, probiotics, dietary restrictions... I feel like I have tried almost everything. There are still some supplements I would like to try but i am not too hopeful that I will see any improvement. For me, drugs are the only thing that have helped. Wish I could say otherwise.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 10:50 AM (GMT -6)   
I'm criticizing the claims that it's antibiotic qualities kill viruses and fungi. Antibiotics kill bacteria, not viruses and fungi. False scientific claims really annoy me. Maybe it does kill viruses and fungi, but it's not because it's an antibiotic.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/4/2009 11:50 AM (GMT -6)   
He may not know his science, but that doesn't mean the SCD diet didn't work for him.

For me, keeping a food diary helped enormously. By paying attention to the types of foods that people may be sensitive to, I found out that I was fructose intolerant and eliminated foods/beverages high in fructose. My colon was still inflamed; so I added ingredients that are anti-inflammatory and avoided those that are pro-inflammatory. The result was that I went into remission. There was no need for me to try the SCD diet. In fact, there are foods on it that I can not eat. However, I have read that the diet has helped many. I believe it is worth a try. The following site lists foods that are considered legal/illegal for those on the SCD diet:

http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 12:00 PM (GMT -6)   
Like I said, I'm find with him promting the SCD and such as I know it works for quite a few people. I get irritated with bad scientific information, and in my mind, it actually discredits the entire website. Something that's has antibiotic qualities won't have any effect on viruses and fungi. If people think their UC is related to fungi (as many seem to, and I'm not disputing that, b/c we all seem to have different triggers) and try this collodial silver stuff based on what this website says, well, that's not a good thing. Information that's blatently scientifically wrong annoys me.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/4/2009 1:59 PM (GMT -6)   
Poor site design, bad image quality, photos of yourself peeing and grammatical errors tend to discredit a site, too. It's too bad, because he does have some good information to share.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 8/4/2009 2:05 PM (GMT -6)   
butterfly105 said...
I've actually tried the scd diet once before for a week, but didn't see results right away and was always hungry on the diet, so i stopped..but reading about Jay baluk( the creator of the website above) he said he didn't see full results til 6-7 months on the diet..so i think i'll give scd a 100% try once agian.

Fruitgirl wouldn't it be more fair to try the colloidal silver protocol and then criticize it..you never know it might work...crohns and colitis do have a bacterial/viral link to them (overgrowth of bad bacteria in the gut might be the problem) ..=)


I didn't have any luck on SCD before I cut out most sugars (particularly fruit/honey) ... but at that point there's really no difference between SCD and Atkins.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 2:13 PM (GMT -6)   
Too true, princesa. :)
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


butterfly105
New Member


Date Joined Mar 2009
Total Posts : 15
   Posted 8/4/2009 5:12 PM (GMT -6)   
notsosickly girl- I'm sorry to hear that nothing has helped you that much except medicine....for my its the opposite,medicince doesn't really seem to be helping me that much..I've been diagnosed since january 2008, started with pentasa 8x/day.. it stopped working for me after a while.. I had a really bad flare this May'09 due to stress of school and had to withdraw from my courses..i was put on prednisone, which helped but as the dosage decreased the symptoms came back..then started imuran, but it caused me to have really bad abdominal pain and a fever, so i stopped taking that..I took the summer off school to focus on my health and started searching the internet for some natural remedies..i came across the scd diet website, jini patels website, and crohns boy's website.....have you tried any of jini patels' protocols?..she dealt with widespread cronhns and cured herself thru natural remedies..the main theme i saw in all of the things that seem to be working is that you have to weed out the bad bacteria using a natual anitbiotic-ex. oil of oregano or colloidal silver( or in the case of the scd diet, starve the bad bacteria thru eating certain kinds of carbs)..repopulate you gut by probiotics, scd yogurt (using goat's milk instead of cows milk helped me alot)..or you can use jini patels probiotic retention enema( puts the probiotics directly into your colon)..and then heal your gut..using diet (scd, low carb,maybe the sunflower/ spinach diet..anything that decreases the inflammation..also you can try l-glutamine, georges aloe vera,mucosa heal...etc.)..I haven't tried jini patels protocols yet...but i'm ordering her book..its worth a shot right?..i have nothign to lose and everything to gain..
sorry if i'm not "scientifically correct" in any of the info above..i'm just trying to help
Thank you subdued for the advice on keeping a food diary..i will definitely try that...and thanks to the others for their support and advice.

Princesa- I totally agree that the website has poor design and bad grammar...I thought the website was a joke when i first saw it..but after reading his story and the ibd improvement document..I saw that this guy is really trying to help people..most people that have gained remission just move on with their lives and forget about the disease..but this guy is putting so much time and energy into getting the word out on how he attained remission in hope that is might help someone out their suffering the way he did before..i know the website has his its setbacks and his approach isn't the best..but his intentions are really good.

Good luck to everyone in trying to find ways that work for them!=)
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