What do you say when someone asks

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Veteran Member

Date Joined Jul 2009
Total Posts : 524
   Posted 8/3/2009 8:42 PM (GMT -6)   
It happened to me this morning, a very nice lady who I work with asked me how I was, and she was genuinely interested.

Do I:

  • lie to her.
  • give her way more information than she really wanted to know.

I lied, but I don't like to lie. It bothered me all day, but I'm pretty sure it would have been worse to say "I'm having a UC flare." and then have to explain what that is.
[CENTER]First Diagnosed Feb 2007
Significant flare June-July '07 treated with Prednisone
Asocol X 6 per day
Largely in remission with some minor flares treated with Entocort

Post Edited (wodin) : 8/3/2009 8:48:17 PM (GMT-6)

Forum Moderator

Date Joined Dec 2008
Total Posts : 15924
   Posted 8/3/2009 8:55 PM (GMT -6)   
I usually say "I am doing ok".
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

Veteran Member

Date Joined Aug 2008
Total Posts : 903
   Posted 8/3/2009 9:06 PM (GMT -6)   
I just say that my body is acting up or something like that. I try to keep it hidden but in a way that they still know that I'm not doing that great. People at my work know that I have a "digestive" disease. Some know a bit more, and my boss's mother in law has Crohn's so she knows what I'm dealing with.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 8/3/2009 9:24 PM (GMT -6)   
With people who know about my health issues, I either say "Great!" or "I'm having a bit of a difficult day." They know when I'm feeling really putrid without having to suffer any details.

With people who don't know I usually just say "Fine" unless they can obviously look at me and see that isn't so. Then I usually just say something like "Hanging in there, thanks."
Ulcerative colitis forum co-moderator
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"

Regular Member

Date Joined Feb 2009
Total Posts : 226
   Posted 8/3/2009 9:49 PM (GMT -6)   
Agreed ... unless it's a family member or close friend, I won't go into details ... but I won't ever lie. I think "OK" covers a broad enough spectrum of wellness that it can almost always be used.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 8/3/2009 10:01 PM (GMT -6)   
All around I just say I'm okay, just feeling a little yucky today or something like that. If they ask why I tell them my stomach is just upset and they take that as I'm nauseous and stop asking questions before I have to say no, it's diarrhea thanks.
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou

Veteran Member

Date Joined Jun 2009
Total Posts : 2011
   Posted 8/3/2009 10:18 PM (GMT -6)   
If I don't feel good I'll just say something like, "Been better" or "been worse." Or both lol.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 8/4/2009 6:14 AM (GMT -6)   
With friends and family when they ask I will say either I'm having a bad Uc day (if I am) or that I'm doing ok. For people that don't know I have Uc, asking how you are is just a polite social thing to do and they don't really CARE how you feel, so I just say I'm good.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Deacon Blues
Regular Member

Date Joined Oct 2006
Total Posts : 303
   Posted 8/4/2009 11:50 AM (GMT -6)   
Depends upon whom is asking, whether I think they "really wanna know" and then if I can sense their intentions or motivation for knowing. You say that she really seemed concerned, might be a good time to share, might do some good to explain the disease to someone like this...In our day people say "how ya doin'" all the time, it has become as common as "hello." I don't recall ever informing a stranger, but I have talked to co-workers before and can't say that I regret telling them...though it may be therapeutic???
Diagnosed with UC in Dec of 1999
PANCOLITIS-mild to moderate (remission for 2 years +!!??...i don't know...I am just SO happy when I have a good day!!)
3X400mg Asacol 4x per day
Mild flares a couple times a year
45 yrs old

Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 8/4/2009 12:08 PM (GMT -6)   
i will say im not feeling well but i dont give details
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success

Jen O
Regular Member

Date Joined May 2009
Total Posts : 136
   Posted 8/4/2009 7:34 PM (GMT -6)   
Sometimes I hate it when people (my parents, namely) ask "So, Jen, How ARE you?" And they never want to know like, how was your weekend, or how's work going, or how's your garden looking. It is really meant "so how many times did you go to the bathroom today? / How are your pills working?" It just drives me crazy because sometimes I just don't want to talk to them about my UC!

Age 34, Diagnosed with UC September 2008
Current Meds:
Started Azathioprine 100 mgs 6/22/2009 and Apriso 4 tabs daily 6/11/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Also tried: Remicade, Asacol, Rowasa, Cantasa, Prednisone 2 times for about 3 months each

Regular Member

Date Joined May 2008
Total Posts : 191
   Posted 8/4/2009 7:40 PM (GMT -6)   
Jen O - I totally agree. The question has become annoying for me sometimes. I have a life besides the one my guts sometimes monopolize!
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 8/4/2009 11:13 PM (GMT -6)   
I'm feeling much better. I'm still anemic from having lost so much blood at the end of last year, but I'm doing much better. I have my color back, and I'm not so tired anymore.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).

Sore Tum
Regular Member

Date Joined Jun 2009
Total Posts : 144
   Posted 8/5/2009 2:16 AM (GMT -6)   
Stock response: I'm fine thank you, how are you?
I only tell those that are very close to me how I genuinely feel, and even then I sometimes just give the stock response!
I'm bored of this disease and it complications it consumes my life enough without having to share it with everyone.
30 year old, female.
Finally diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.

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