Hi, I'd like to know if I've doomed myself. A big thank you if you read through this, an even bigger thank you if you reply =(
I've been diagnosed with UC for almost four years now. I've had it for at least six though, it took THAT long for my doctors to realise what was wrong. I was a kid, people thought I wasn't eating my vegetables (ugh). It started small, we went to the doctor, he told us the same thing over and over. It wasn't until it got to the point where I was regularly bleeding and had horrible stomach pains that they finally sent me off for tests and realised that I had UC.
The medication for the most part suppressed my pains. I no longer feel like I have some rabid animal trying to claw its way out of my gut. I realised that stress had a big role to play too, if I was under alot of pressure it would almost degrade back to the state it was before my meds.
I've stopped eating most junk foods and fast foods, I'm trying to cut off from coffee too since I think that that's giving me issues (but oh how I love it *sad* ). I'm careful not to drink to much milk. I avoid eating +too+ much fibre because alot can make it worse (weird eh? I'm completely on the other end away from constipation). I eat red meats for iron and such. Coke and pepsi are like torture in a can, I run from those.
My doctor.... When I asked him about
watching what I eat he told me eat whatever I like, that my diet doesn't do anything. When I told him my medication wasn't completely curing me he just upped my meds to the point where I was having crippling pains in my sides. Admittedly this one was my fault, I complained to much but still... They didn't know it was the meds that caused this new pain. I ended up having my kidneys scanned along with anything else that might have been the cause. They found nothing wrong. I found out on my own that I was over dosing. If I felt it starting up, I'd drink like a gallon of water and it would go away.
I re-adjusted my medication. I adjusted my diet. I worked on keeping the stress levels down, and now I've started exercising. I try my best to eat healthy meals and get enough of the nutrients I need. My weight stopped teetering on the edge of a dangerous drop, I've actually managed to gain some weight. I don't look sickly pale anymore.
.. .But I almost never seem to go back to normal. When I DO seem ok, 'normal', it then quickly slips back into the old habits. I'm usually dealing with a mild case of diarrhea. Once a week (or two) it can progress to bleeding again. In terms of the pain, I no longer feel anything more than discomfort or an unpleasant ache unless I decide to get stupid and eat the things that I've black listed.
I can control myself better, I don't have to make random dashes to the bathroom so often which is a HUGE plus as far as I'm concerned. It gives me the illusion that I've got some control over it =P
Is what I'm doing bad?
Is my medication not working right?
Should my medication be making me completely normal?
Should I go back to my doctor and ask him to try and fix it for me?
I'm so messed up...
EDIT: Adding these in because I forgot to the first time
The medication I'm taking is 5-Aminosal 500MG
I'm taking 5 tablets a day (6 if I suspect something is up). I haven't researched the different medications to much... Mostly because every time I mention trying a new one I'm told that I can only switch to Steroids.
I do generally know where my UC is located, I'm unfortunate that it's in two places. From what I was told my rectum and the area around it is a mess. I've also got a bit of it happening around farther down in the track, at the other end of the large intestine.
Post Edited (Arutasi) : 8/4/2009 9:45:54 PM (GMT-6)