So i have just been observing on this site for a few weeks, very helpful! i am currently taking 20mg pred, six lialda per day and one 6-mp...
Seems like i miss every monday or tuesday of work cause it is so hard to get started again.. i start going to the restroom every morning at about 4am and dont stop till i leave for work. I asked my dr to get back on remicade, so we are going to try it next week. also i told my dr i am finally considering the j-pouch surgery because i have been reading posts of these 60 and 70 year old people with UC for 30 years, and i was thinking how i would hate to deal with this pain, urgency, and frequent trips to restroom for my whole life, i am 24 now...
i asked the nurse if she thinks we could do the surgery this year and she said yes, my only concern is, my wife is 3.5 months pregnant, she is due jan 25, 2010...i would hate to be recovering or in the hospital when she is going into labor..
but then again, i think it might be harder on us if i have the surgery next year, with a newborn in the house. or should i have the surgery at all?? i know its my decision but i feel sometimes that my UC isnt bad enough, but then again just having the worry of a flare up while being a dad and the breadwinner is bad enough.. any words? ideas? you guys are great! thanks in advance...
24 year old guy, UC since I was 17
remicade for two years, worked great but got married and was told it could cause birth defects so I quit feb 08.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
starting back on remicade to see if i can get some relief next week,
considering j-pouch surgery this year
Post Edited (ruissarr) : 8/7/2009 7:41:23 AM (GMT-6)