Uneventful GI visit today

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fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 4:14 PM (GMT -6)   
I saw my GI today, just as a followup to my last vist, where we decreased my Rowasa to twice weekly for a month, then switched from Asacol to Apriso for another month before seeing him again (while holding steady on the Rowasa).  He was happy with how I'm doing (and said he was glad to see I was gaining weight, even though I'm probably not, which is true!) and said that he doesn't need to see me until January unless I need to come in.  He said he was happy to keep prescribing the Rowasa for use twice weekly; I asked if there was any reason to NOT use it, and he said that other than the convenience (or lack thereof) factor, there's not.  So, as he knows I don't mind doing it, he said to go for it.  He ordered some bloodwork just to make sure the meds aren't screwing with anything and said he'd call if anything is wrong.
 
So, here's hoping I don't see him until January!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/4/2009 5:46 PM (GMT -6)   
Great to hear it was uneventful...lol...I had lots of those and the response was "see you in 6 months".

If you do got the prescription, does it say to use twice weekly? or as needed?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 5:53 PM (GMT -6)   
I think he wrote it for use every other night or "as needed." I can't remember, though. He wanted it more than twice weekly in case I started to flare and needed to up it. I think I still have refills left on the one that's written for nightly use, which is nice, because that means less co-pays! :)

And actually, now that I re-read my OP, I hope I DON'T see him in January! I've got a lead on a job in Chicago (back close to family) that sounds promising. The university jobs didn't pan out. I'm kind of sad about it, but also think it's good, b/c in my field, they tend to be more stressful than industry jobs. So, we'll see what happens.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/4/2009 5:54 PM (GMT -6)   
Sounds like you have a good thing going!  Great!  I have had MANY doctor and NP visits to change/prescribe medications and "see you in 3 months or 6 months".  I just never get that far as the side effects take over or everything goes wrong.  THEN I have problems getting through to anyone at his office to find out what to do next.  He just assumes all will be well I guess.  I am ready to change doctors.  This is my local gastro doc.  The one he recommended in Albany which is 150 miles away I will still see in October.  I thought he was just for consultation and seems my local doc has written me off.  I understand I need to talk with doc who prescribes the medications - but I thought it was just a consultation.  My husband and I understood same thing.  I can't drive or connect all the time with a doctor so far away so I guess I will change doctors
if I can find one who will take me.  I am off all medications and going backwards.  Thinking of starting prednisone again on my own - I have plenty!
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/4/2009 6:05 PM (GMT -6)   
Thanks, Elaine! I really feel like I do...hope I don't jinx myself. I really wish you lived in my area, as I would highly recommend my GI. He and his staff are awesome about returning phone calls and answering questions, and I'm able to get in to see him really quickly when I'm not doing well. He also is willing to spend quite a bit of time with me at appointments and thinks it's good that I've done so much to educate myself about UC.

Anyway, I wish you a lot of luck in finding a good doctor and in getting to remission! If you'd like help getting names of GIs in your area, I'm willing to help you out with an internet search. I love to dig up info! I might not be able to find any reviews, but I'll try!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16714
   Posted 8/4/2009 6:45 PM (GMT -6)   
I am happy to hear you're doing so well. I've been having a few minor blips here and there. I wish I was in complete remission. I don't think I ever will be.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/4/2009 8:07 PM (GMT -6)   

fruitgirl - for some reason I am not getting emails with my replies - oh well - just happened to find yours.

I am VERY proficient in research (for an old lady) and am aware of about all the good doctors in my area and their credentials.  Thinking today of the doctor who took out my gallbladder some years ago.  I did not go back to him after but remember how I liked him and he did a great surgery on me as my gallbladder was bad shape.  First, I have to straighten things out with my gastro here - he recommended a consult with the doctor 150 miles away so I know he has my best interest at heart!! 

I will decide as the week goes on.  Just dread going to bed as I wake up sick every morning! Two primary care doctors and two gastro doctors don't know why!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/5/2009 7:44 AM (GMT -6)   
I like it too when my GI says, "See you in 6 months"! It's sort of a relief because it means you are getting better! :)
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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/5/2009 3:06 PM (GMT 0)   

Red - I don't see it that way anymore - used to.  When my doctor says that HE ASSUMES that the medication he gave me will work wonders and I won't need to return.  Actually, it is never the medication working but the side effects.  I believe he is "upset" and surprised when I have to call with problems - like he does not want to see or talk with me for 6 months!  Just the read I get.  Only the specialist in Albany called me and said to call him anytime with any problems.  That may be tested soon.

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 10:04 AM (GMT -6)   
Elaine, that has to be frustrating when you don't have something that's working! My doctor wanted to see me a LOT when I was still flaring badly, then started spacing appointments out as I got better. He of course always tells me to call if I'm having problems. Glad you feel comfortable about doing internet research!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/5/2009 10:48 AM (GMT -6)   

I feel very comfortable about doing the research but one has to be careful about what one believes - there is so much info that is incorrect or partial!  I just check the doctors education, experience, etc. and don't go much by people's opinions as we are all so different and see things differently. I am known to be "mouthy" and talk too much and doctor and nurses do not like that about me.  I think that is why they hesitate to call me! Because I am 69 I know they also think I am "whining" and overstating how I really feel.  Right now I am just trying to find out which doctor is really treating me.  The new specialist in Albany would be wonderful but he is 150 miles which included for me a train ride and hotel which is expensive.  Ok - a couple times a year or so.  We will see what happens.  I am going on a week vacation next week so will deal with it myself probably - take prednisone or not - whatever I feel works.  Loading up on Imodium and pepto bismal and peppermint tea.  If nothing gets worse that will work for a week. 

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 10:55 AM (GMT -6)   
Yeah, I know what you mean about being careful about what you believe. I think a lot of people forget that anyone can create a website that says ANYthing...there's no review process. I basically don't believe anything unless there's good, solid research to back up the claims, and I have to have be able to read the article (or abstract) that was published in a reputable journal to believe it. Maybe I sound paranoid, but I'm a researcher!

Maybe you can work with the specialist in Albany via phone calls mostly. Some docs are willing to do that, so you never know! At any rate, I hope you have a nice vacation!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/5/2009 4:46 PM (GMT -6)   
LOL...I'm going to start a website about rectal meds...lol...I might not have as good of a following, however.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 4:48 PM (GMT -6)   
Hahaha! I'd contribute to it...you know, as a testimonial!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/5/2009 4:51 PM (GMT -6)   
Thanks, I knew you would..that's why I wrote it, heehee...

Here's to the 5ASA enema....a lifesaver to say the least for those who can use it..

q


*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 4:59 PM (GMT -6)   
Cheers!
::tipping my glass of Pinot Noir to you::
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/5/2009 5:49 PM (GMT -6)   

Thanks!  My husband said the secretary from my gastro docs office finally called when I was out.  She was supposed to call yesterday.  I came home about 4 and she did not call back.  He told her I really needed to talk to her.  I need to find out who is really treating me.  Yes, I may go with the new doc in Albany by phone.  He was good about calling me first time.  You call a nurse who screens calls and takes down info and the doctor calls you back before the day is over if at all possible.  Then I could just go through my primary care doctor here for tests, etc.

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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