Flaring again??? I guess????

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Taben
Regular Member


Date Joined Jan 2006
Total Posts : 147
   Posted 8/5/2009 10:55 AM (GMT -6)   
Hey all,
 
Been over a year since I been on the website...was diagnosed in 05' with colitis.  Had the flare until mid 06 and then a light flare last year and I think it is happening again.
 
So, here's the scoop.  I have been having diarrhea for a couple weeks but don't go a lot over the course of the day.  Some days only three times, others a time or two more or less.  Really, not the same each day and not every day I have blood.  Yes, the little demon that shows up in the bowl.  LOL  I am thinking I am looking at another doctor's visit in the near future.  Can't get in until a couple weeks from now, I have a couple days off then.
 
Thing is, I would hope this is something I could nip in the bud and try some over the counter meds. first thinking I could help it stop.  This time, it is not as bad as the first time in 05' of course (that was hell) and then last year was light (just a couple months and then I was fine).  Of course, meant taking Imuran, Coloazal and the necessary evil drug Prednisone.
 
Out of your experience, do you think I am in a flare?  I am still new to this.  Do I just take for granted when there's blood in the stool (not every time) and I do have some urgency sometimes then I am?  Would that be my guidelines to go by for the rest of my life?  My doctor is good but not the best in his bedside manner you go in and your are out QUICK.  I guess I can call the doctor's office and see if I can get in those days I will be off hoping that this will go away by itself but if not, I know what is ahead of me.
 
What do you think?  I am not lactose intolerant and I do eat the Light and Fit yogurt almost daily (one container..should I eat more?) and don't drink or smoke or drink coffee.  Basically, other than this stupid colon acting up, I am healthy as a horse.  : )
 
Okay...will go now...getting too wordy.  That's Italian for you!  LOLOL
 
Thank you very much for your help and support. 
 
 

[~Tammy~
 
Diagnosed with UC/Pancolitis Dec. 05-Flaring again Presently????
 
 
 
Try to keep positive and have faith!


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 8/5/2009 11:15 AM (GMT -6)   
Since you've been having D for a few weeks, some urgency and seeing blood too, this does sound like a flare, and I'd recommend seeing your GI specialist soon. I've learned that the sooner you try to get it under control, the easier it is.

Are you still taking imuran and colazal?
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 11:16 AM (GMT -6)   
Ditto what Rio says.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Taben
Regular Member


Date Joined Jan 2006
Total Posts : 147
   Posted 8/5/2009 11:23 AM (GMT -6)   
Nope...been clean of meds since last year from the other flare.  Yeah, thinking I should make a call too.  I hate this colon!!!  Well, at least I am not expriencing a really bad flare and cramping a lot like the first time.  Yeah, colon is tender some but that's part of it I guess.  The doc. just prescribes me the usual cocktail of meds and it clears up withing a month or two.  I am thankful I am one of the luck ones with this condition...it always could be worse.  Just gets old where you always have to know WHERE that bathroom is wherever you go...just in case.  Got to love it.  LOLOL
 
 
What do you think about the yogurt?
[~Tammy~
 
Diagnosed with UC/Pancolitis Dec. 05-Flaring again Presently????
 
 
 
Try to keep positive and have faith!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 11:30 AM (GMT -6)   
I'd probably take a probiotic supplement instead of relying on yogurt as there are more of the little buggers in a good supplement than in a container of yogurt. And check the ingredients on the yogurt...it's name leads me to believe it has an artificial sweetner in it, which can be rough on many UCers guts.

Why aren't you on maintenance meds? If you stay on a 5ASA or something of the sort, you might not have flares (or might have them less often).
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Taben
Regular Member


Date Joined Jan 2006
Total Posts : 147
   Posted 8/5/2009 12:10 PM (GMT -6)   
Well, you are probably right with the yogurt.  Probably some artificial sweeteners in it since it is a low cal product.
 
What should I try then?  Activia???
 
I got better and actually had no more issues and got tired of taking 11 pills a day.  I am still new to this.  I don't want to take those horse pills every day of my life.  NO WAY!  I am not being stubborn by no means, but I am not a serious candidate either.  Granted, was a bad flare I thought the first time but the second time last year, not that bad.     
[~Tammy~
 
Diagnosed with UC/Pancolitis Dec. 05-Flaring again Presently????
 
 
 
Try to keep positive and have faith!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 12:25 PM (GMT -6)   
Like I said, you're better off to take a probiotic supplement (pill) than the yogurt, as the number of live bacteria in the pills is higher, and therefore more effective. I'd be careful with Activia...I tried it before I was diagnosed, and it made my diarrhea a lot worse. If you look at their website, it says it's more for treating "slow" bowels. However, I know some people on here eat it and are fine. If you really prefer eating yogurt, just get one that doesn't have artificial sweener...just read the label to find out.

I'm in remission right now (feel great!) and I fully intend to keep on taking my pills. I'm on Apriso, which is a newer formulation of mesalamine, and I only take 4 pills (granted, they are huge) in the morning. There are a lot of studies that show that patients who stay on maintenance meds are much more likely to stay in remission for longer stretches of time. Some people have success with diet modification, but the great majority of us depend on meds to keep us in remission.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/5/2009 1:18 PM (GMT -6)   
I think you should get back on some medications asap. Several times I ignored the eary warning signs of a flare and ended up much worse off because of it. I have now learned to catch it and treat it early...for me that has kept me out of having a bad flare for over a year now...granted I have had several smaller flares but nothing like it was the first year I was diagnosed....treat early from both ends!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 8/5/2009 1:36 PM (GMT -6)   
I'm guessing that you didn't follow your doctor's advice when you stopped taking imuran and colazal -- unless you were having adverse reactions to them. The goal then was probably to take prednisone to get you into remission, and to keep on taking colazal and imuran to stay in long-term remission.

Probiotics should help, but taking the maintenance meds is extremely important.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/5/2009 2:28 PM (GMT -6)   
Taben's reply, which somehow got posted in a new thread (mods, I hope this is ok!)
"Yes, I did follow the instructions of my doc. I tapered myself off the colazal. I have been fine ever since until just recently with NO meds. I didn't stop anything cold turkey."


So you wre on Colazal as recently as last year? People with UC *can* go for a while in remission without being on maintenance meds. But like I said, studies show that those who stay on mainetnance meds stay in remission for longer than those that don't.

And I'm confused by your last reply...when you say "tapered myself off the colazal" that, to me, sounds like you made the decision to do it. Sorry if I'm being thick...
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Taben
Regular Member


Date Joined Jan 2006
Total Posts : 147
   Posted 8/5/2009 2:47 PM (GMT -6)   
I already made a call to my doctor and will be getting the return call shortly.  Can't get in until the 24th.  Doc. just called and said to start back on the colazal until I can get in.  Stay tuned.  : )

[~Tammy~
 
Diagnosed with UC/Pancolitis Dec. 05-Flaring again Presently????
 
 
 
Try to keep positive and have faith!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30384
   Posted 8/5/2009 3:19 PM (GMT -6)   
Hi Tammy..sucks you're flaring, but that's what happens when we have UC...only some are the exception to the rule of having few flares in their lifetime.

Since you do have pancolitis, you should truly be on the oral 5ASA meds and PLEASE ask the doc for the 5ASA retention enemas to help get the rectal inflammation dealt with too.

I know you don't want to be on meds forever...I didn't either, but 20 years later, I'm relieved there's at least an option I can use with the least side effects (unless one cannot use salicylates)....

Seems like experience is becoming your teacher...


Let us know the outcome of the call-back.
quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 8/5/2009 6:02 PM (GMT -6)   
Good luck with the appointment.

Colazal isn't typically the kind of drug that you take for just a few months and then taper off, and the same goes for imuran. That's why I was wondering whether you were following doctor's instructions, or just decided to stop them on your own (or maybe you just misunderstood how he wanted you to take them).
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/5/2009 7:18 PM (GMT -6)   
Pertaining to the yogurt, I think that kefir works better. I never had luck with the probiotic pills but it doesn't hurt to try.

Also natural things won't hurt. Turmeric works well.

And yes, I totally agree you need to be on maitenance meds. If you had to be put on Imuran it doesn't seem like you'd really get to get off it. I might be ignorant, but that's the impression I get.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 8/5/2009 10:24 PM (GMT -6)   
I'd say get off the yogurt particularly if it has whey, corn syrup, or complex sugars in it.  I would seriously consider changing your diet if possible.
 
 
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.

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