I am having one of those frustrating days when it seems like I am surrounded by well intentioned, yet idiotic people. I know we all have felt this way to some extent or another!!
Things with me are very good right now-I can't complain. Aside from some streaks of blood that started when I was last on antibiotics (for which I am back on canasa at night), I am going once or twice a day with formed BMs. The canasa causes joint pain, but it is temporary, so whatever.
I went to the GI just for a regular office visit today, and we discussed future pregnancies. Just planning ahead, looking into options kind of thing. (we are at least a year off from moving ahead with any more kids-if we ever do-we feel like it isn't important enough right now to risk my health in anyway) I updated on FB, and all of a sudden, everyone is an expert, you know??? This one HS friend of mine, who I know means well, is constantly sending me links to the possible dangers of Humira (she is all holisitic-won't even vaccinate her children), telling me about Homeopaths in our area, telling me about my options, telling me she understands because her grandfather had colon cancer, etc. I mean, I get it, she is trying to help. But she honestly has NO clue what *my* ulcerative colitis is like. She has no idea what it is like to be hospitalized because of it, to live with it, to live everyday with weighing the risks of being on meds or not. I don't have a mild case of UC-I don't have any desire right now to try and go med free and try and control this holistically-I tried that and wound up in the hospital!
And then there is the whole third baby thing. I'll be honest-it saddens me that we have had to put our plans to expand our family on hold. It is upsetting to me that we may never be able to have another child because of the ins and outs of these meds (though the GI said today that they could probably write a letter and get the insurance to cover Humira if need be, if it isn't approved before we were to get pregnant again). But I HATE when people tell me, "You are lucky to have the two you have! You should just be happy with that." I AM happy with that. I KNOW I am lucky to have the two that I have. I wouldn't even be discussing it if having more children weren't THAT important to me.
I love the most when people say, "Oh, I totally understand-I had a stomach virus this past winter and it was brutal. What is it that you have again?"
Again, I know people mean well, but my goodness do I wish they would just shut up some days.
Thanks for letting me vent...
34 years old, stay at home mom of 2 girls, ages 4 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa temporarily because I took Biaxin for sinuses and started seeing streaks of blood again.
Also take multivitamins and milk thistle daily.