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sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/6/2009 3:43 PM (GMT -6)   
I'm just curious as to what our pre-UC bowel/immune system health was like to see if any of us are similar. Here's mine:
 
I guess I had a constipation problem, but it wasn't uncomfortable; I would go once every one or two weeks, completely normal stool. I thought this frequency was normal.
 
As for my immune system, I very rarely got sick and always contributed it to my appetite for oranges lol. Anyways, when I did manage to get sick, it could get very bad, even resulting in trips to the hospital or ER.
 
And yeah, now I have UC. So just curious! =)
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/6/2009 3:57 PM (GMT -6)   
I think i visited for #2 a couple times day, mostly morning. Just got the typical colds. Never went to the doctor for a sickness though since I was a little kid. Actually, I still haven't been to the doc for anything other than UC. I do think I needed a psychiatrist a few times though, lol. yeah
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


TripleKiss
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 8/6/2009 6:02 PM (GMT -6)   
ElephantPipe- sounds exactly like how I was pre-UC.  I was very rarely constitpated, but only had 1-2 bowel movements a week (or one small one if I drank coffee!).  I am pretty small and dont eat a lot so I figured I just didnt have that much in there! 
 
Also very rarely got sick with colds or whatever, although I did have a series of small infected bumps occassionally for about a year (for which I was put on antibiotics each time and have the feeling it contributed to the UC).  Then had cervical dysplasia (got a LEEP).  And a few months later the UC started.  This is probably more info than you wanted BUT, bottom line is, my BMs etc were just like yours.  Wonder if this is an early indicator??
DX: UC (Proctitis) January 2009 (age 24)
Status: Currently in flare since Aug 2008 without remission
Medications: Align (probiotic), Cortisone Enema, Lialda, Prednisone (tapering), Flagyl, Cipro, Canasa, anticipating Dipentum after round of Prednisone,
Testing the spinach & sunflower diet (so far so good!), and coconut oil 
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 8/6/2009 6:06 PM (GMT -6)   
Never, ever got sick before UC -- even getting a cold didn't happen. The only times I needed to go to the doctor was for typical stuff when I was a kid...vaccinations, annual check-ups....That's why I didn't think much of it when I was diagnosed with UC as I figured that I'd be over it soon.

Pre-UC I had 1 BM, once a day in the morning, and that was it.

ElephantPipe -- having 1 BM every 2 weeks sounds crazy. I can't relate to that (That must have been one hell of a bowl-clogger!)
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/6/2009 7:45 PM (GMT -6)   
TripleKiss, that's what I've been wondering, so I started this =)

Rio: It felt completey normal to me then! lol, granted, it took me a while to poop, I'm still a slow pooper (and I can't go without a book lol). But really, they weren't too big.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/6/2009 7:50 PM (GMT -6)   
I honestly don't think I had any bowel issues before being diagnosed. With constipation or D. I believe I was normal - it's hard for me to remember because it was 17 years ago. But my immune system was whacked out. Right around 19 years of age, I started getting really bad infections. Anywhere from bronchitis, ear infections, strep etc. These repetitive infections continued until I was diagnosed (which was about 3 years) and it continued for quite some time. It wasn't until I hit my 30's that my immune system started to settle down a bit and now I hardly ever get sick.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 8/6/2009 8:35 PM (GMT -6)   
No bowel issues for me pre-diagnosis. I was a once a day (or once every other if I ate really binding foods) kind of girl. I never had a problem there. I went through one period of adjustment when I went away to college and had stage fright, lol, but otherwise was definitely normal in that regard.

I rarely got sick, but then in the last year before starting to have kids started getting sinus infections and was put on antibiotics constantly, then had incision infections with my deliveries and had MORE antibiotics for those. It was the day after my last course of erythromycin (I'm allergic to pen.) when my youngest was born that I started seeing blood and a few months later was diagnosed. My current GI said that without question all of those antibiotics played a huge role in triggering my disease.
Laura
 
34 years old, stay at home mom of 2 girls, ages 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa temporarily because I took Biaxin for sinuses and started seeing streaks of blood again.
 
Also take multivitamins and milk thistle daily.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 8/6/2009 8:54 PM (GMT -6)   
at first I was fine, but then I was showing symptoms of bleeding. That was when I was a child. I would have problems going #2, but it wasn't a big deal. I told my mom, but I didn't stress it much. I would not really eat lunch as I was in jr. high, and highschool. My eating habits weren't all that great. Now that my UC surfaced, I now HAVE to eat 3 to 4 times a day or else I'd feel like I'm starving.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 8/7/2009 2:10 AM (GMT -6)   
I had no health problems before U/C i was always the one who did not get anything am sure making up for it now lol.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/7/2009 7:40 AM (GMT -6)   
I guess I'm the odd one out right now.

Before UC I went up to 3 times a day everyday. I have a fast system.. It was never runny or anything, but there was always a lot. I thought about this a while ago, and what I did back then looked like what I do now after I'm feeling much better. Before UC I would go in the bathroom and feel pretty sick until it was all over. Super weird... My UC showed up after I spent a full two semesters in the dorms at my local college. I had a few symptoms of it then, but nothing bad enough to impact my life too much. I ignored it and went away when I moved back home, but came back full force a few months later.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/7/2009 8:24 AM (GMT -6)   
when i was 5, we moved away from my grandparents, who i had lived next door to my whole 5 years, my parents said my poop was bright green and i was doubled over in pain, so they took me back to grandmas for a week and i was better,
i have always been a worrier, keep things bottled up and worry about EVERYTHING; my dad thinks this is a big reason i am sick, im not sure.

most recently tho, the year i graduated high school we went to a graduation party and a little girl had a virus or the flu, me and my friends had diarreah and threw up for about 24 hours, and they got over it, but my diarreah stayed, and i have been sick ever since..
the first time i got sick, i was in bed for 2 weeks, lost 20 pounds and couldnt eat anything, my fever was so high, i was halucinating..(wrong spellin), they took me to the ER and they said i had the flu

oh ya, someone mentioned infections, i used to get ear infections all the time, and now, ever since i can remember, my ear has itched! its so weird, but if any water is in my ear it itchs so bad and i have to clean/scratch it a few times a day with rolled up TP, not sure if thats an immune issue?


24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
starting back on at least one remicade IV to see if i can get some relief next week,
most likely having j-pouch surgery this year, within a couple months, so i can be healthy for my baby, meet with my dr about it august 10!

Post Edited (ruissarr) : 8/7/2009 8:28:38 AM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/7/2009 2:13 PM (GMT -6)   
I never had any health problems before UC. Hardly ever missed a day of school growing up. My mother was the school nurse, so we probably built up good immunities.

Oh, I had severe acne in my teens, I guess that's a minor health problem. Nothing helped, so I took Accutane. I am convinced that Accutane caused me to develop UC.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/7/2009 2:16 PM (GMT -6)   
I never really had any bowel issues before UC. I got the occasional tummy bug (but most kids do) and I have sensitivities to artificial sweeners and MSG, but I don't think that's related to UC. I'm gassy, but I'm from a family of farters! :)

I was so prone to strep that I had my tonsils out when I was 5...but after that, I was relatively healthy and not on antibiotics all that often. I also had problems with UTIs when my husband and I first started having sex (pre-marriage...gasp!) and were at each other constantly.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


calm-on-the-outside
Veteran Member


Date Joined Aug 2009
Total Posts : 832
   Posted 8/7/2009 3:01 PM (GMT -6)   
I didn't have any health problems at all. And my bowels were great...I thought I was so lucky b/c so many people I know have IBS and I never did at all.

I took Accutane as well, so I"m wondering about that. Of course they didn't tell us colitis was a risk did they?

Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 8/7/2009 8:11 PM (GMT -6)   
I remember having some problems with hard stools when I was a kid, but it was honestly probably my diet. Also, I rarely got stomaches or threw up.

I have several allergies and would get a yearly strep or sinus infection up til probably the end of high school.
22, female, diagnosed 3/6/2009, symptoms for 2 years beforehand
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (1200 mg 3x/day), Rowasa and Calcium/D supplements


festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 8/7/2009 8:47 PM (GMT -6)   
I too had hard stools as a child but I was wondering if any of you noticed this? Years before I got UC, anytime I went to the Doctors for a well visit or blood work they were always alarmed that my white blood count was high and off the chart. They were amazed when they could find no fever or infection.

Looking back now my autoimmune system was already out of wack way back then and was probably the beginning of the end, so to speak.
600 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16288
   Posted 8/7/2009 8:57 PM (GMT -6)   
I think I had pretty normal bowels when I was younger. A few months before I started having colitis symptoms I had a bad bought of hives. I also had a few surgeries prior to developing Colitis. I always wonder if any of this is linked but I kind of doubt it is. My parents both constantly complain about their guts. I think it runs in the family but I am the only lucky one who has a chronic condition.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 8/7/2009 9:05 PM (GMT -6)   
Before UC I was a once a day kind of person. In 7th grade I started noticing my intolerance to lactose and probably the next year IBS and then the summer before 9th grade I had an h-pylori infection and was diagnosed in 10th grade.
As a kid I was ALWAYS sick. I was a strep throat carrier (normally when you are a carrier you don't get sick...but I did). I had at least 3 cases a winter, if not more. I had a lot of ear infections too and have tubes put in.
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
Maya Angelou


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/7/2009 10:09 PM (GMT -6)   
Ya know, before I got sick with UC I had my wisdom teeth out. I had a really bad time with that, and I was on Lortab for almost the entire summer. I got the flu about 3 months after that and the rest is history...
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


jerkygirl
New Member


Date Joined Jun 2009
Total Posts : 17
   Posted 8/8/2009 2:14 AM (GMT -6)   
as a child, had yearly bouts of bronchitis with loads of penicillin and aniobiotics (my teeth went yellow!)
grew out of those bad attack and was relatively fine till my teens when I took Accutane as well. I also think this contributed.
My bowels never gave any troubles until early 20s when I worked out that I shouldnt drink milk, but as soon as I switched to soy, all was good again.
Most recently in November last year I had first bout of hives that lasted 6 weeks (I was going nuts with the itching!), followed by a smaller bout early in Feb. In March the blood started and May I had my colonoscopy and was dx with UP.
*sigh* I wish I had never taken that darn acne drug. I swear it is the cause of many peoples ills. I read somewhere there is a class action by a bunch of US ppl that developed UP/UC after taking it. I will have to look for that again and see how it progresses.

jerkygirl

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/8/2009 7:01 AM (GMT -6)   
I was completely normal. I could eat anything and it didn't bother my stomach.
I would get normal colds and they always seemed to last longer than most people, but other than that, I was never sick and never went to the doctor
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
Back up to 30mg Prednisone UGH
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/8/2009 11:56 AM (GMT -6)   
I didn't get sick more or less than everyone else.

I did have to take antibiotics a lot due to infections. I got ear infections, because my ear canals point down, at least that's what my doctor said. Like my dad, I got a lot of sinus infections, which were probably allergy- or weather-related, because I only get them in cold climates. And then like my mom and dad, I got acne.

Everyone in my family has strong colons. Mine was strong too until I moved to Asia, got a horrible skin infection, and took antibiotics for two years straight.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


kelli_C
Regular Member


Date Joined Jul 2009
Total Posts : 130
   Posted 8/8/2009 12:11 PM (GMT -6)   
When i was younger, i had pretty normal bowels habits...i guess like once a day or so.  However, during my early teenage years, i started holding my bowels for weeks at a time, and ignoring the urge to go until it got so bad that i would HAVE to take care of it.  That was a rough few years, and finally I stopped doing that - decided that no matter how much it hurt each day, i would go #2.  I had been all "regular" again for a few years when i discovered that i had UC.  Totally thought it was a direct result of my earlier bowel habits, but the doctor assurred me it wasn't. 
 
Other than that craziness, I was pretty normal sickness-wise...normal colds and things, but no major illnesses. 
Ulcerative Colitis, dx in 1998 at age 18
Rowasa morning and night, Asacol 2x4
Allergic to Sulfasalzine
Now I take no meds or supplements (but some asacol on-hand if I feel a flare-up coming on)


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/8/2009 7:03 PM (GMT -6)   
I forgot all about sinus infections and ear infections... I had a few sinus infections, not a TON, but I did get frequent earaches. My eardrum actually burst once. Thankfully they stopped before they had to put tubes in as I was terrified of that happening lol.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 8/9/2009 7:03 AM (GMT -6)   
I nevr ever thought about bowel movements etc. before I got UC, I was a classic case of healthy guts, I guess. I went when the urge became strong, could hold on forever, always had formed stools, never constipated or diarrhea. It all changed when I quit smoking. I stated to notice urgency during the day at work and hadd to go. Then seemingly undigested bits were in the stools. Then days of bloating and trapped gas, followed by days of 5-6 urgent movements. Then blood and mucous and you all know the rest... a year after quitting I was in colonoscopy and prednisone world!
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

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