Hi there. Hope you're better soon...and don't get too stressed out about
it. Getting diagnosed with UC can be a lot to take in at first but once you work out the right treatment options things get a lot easier to deal with.
I'll answer your questions:
1. How often do people flare commonly...once a year? Is it possible to be in logn term remission with Asacol maintenance..by long term I kind of hope never flare again?
UC is unpredictable so I'm not sure you'll get a standard answer on how often people flare. Someone might just have one flare and that could last for months, or have a few flares a year that are only for a couple of weeks. Also, a lot of people get in remission and stay in remission for years, and you probably won't find them on this forum as they don't have the need to be here.
2. I am already feeling better after just two prednisone doses i think..did my GI give me too much? 40 mg seems a little high to me. Also not prescribed any suppository..
Prednisone works very fast. Often within a day or so of starting on it. 40mg is a common starting dose, but just wondering from what you wrote, are you on 40mg for one entire month and only then supposed to start tapering down? You might want to re-check that taper with your doctor as it seems like a long time to be at 40mg before tapering.
3. Is the predinosone taper alwyas risky and causing flares?
No tapering doesn't always cause flares. It's risky in the sense that you don't want to get off it too quickly as that can be a jolt to the system.
4. Most important question - all the websites I am seeing seem to indicate that colon cancer is a very real risk after 10-12 years of having the disease. Is this true even if most of the time you are in remission?
After 10 years of having this, there is a slightly higher risk of having UC, but I think if you're in remission during this time then the odds of getting colon cancer are lower. Whatever it is, I wouldn't worry about
that right now. Just focus on getting better.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
Vitamin E enema or Canasa/Mesacol suppository occasionally
Post Edited (Rio in Maryland) : 8/6/2009 7:24:04 PM (GMT-6)