TAPER OFF PRED DOES UC COME BACK?

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MITSY
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/7/2009 6:45 AM (GMT -6)   
 
I m new to this! I have recently been diagnosed with uc about two months ago after spending 2 weeks in hospital, they managed to reduce to inflamation etc by putting me on drip of predisone. I ve been tapering off this ever since but every time I get to 15mg i seem to need to go to the toilet a lot more again average 5/6 times ussually all in the morning, Last time doc put me back up to 25mg and tapered off slowly but happening again. No blood with it only on paper which i think is from hemeroids which got since hospital. Is this normal for me now or is it a sign that the uc has not gone yet? forgot to say also have some pain when going to toilet no anywhere near as bad when in hospital but still there.
 
Sorry for babbling just not sure who to ask as don't want to bother doc all the time.
 

Post Edited (MITSY) : 8/7/2009 6:40:10 AM (GMT-6)


WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 8/7/2009 8:08 AM (GMT -6)   
This is my second time on pred.  The first time I was on it for only one month.  She had me taper. 20mg 7 days, 15mg 7 days, 10mg 7 days, 5 mg 7 days, then done.  I flared right away.  When I got to 5 mg I had to go all the time.  When off of it completely I went about 10-15 times a day.  She put me back on pred.  I've been on it since June 27, 2009.  I was put on 20mg and on Tuesday of this week I started tapering.  I go 17,5 mg for 7 days, 15mg for 7 days, the 14mg for a week, 13mg for a week, etc. until I'm off it.  I did my second does of remicade on Wed.  I noticed yesterday I went to the bathroom about 10 times in the morning.  On pred I only go about twice a day.  My first remi infusion I got chest pains they only put half the bag in and then stopped.  I had no chest pains on wed(my second dose, they wanted to try one more time).  I hope it works.  I don't know because my first infusion I noticed I went to the bathroom alot more after it also.  Good luck with the pred.  Hopefully you don't get the nasty side effects.  I've been lucky.  The only thing is I get is alittle moody. devil
Mom of Three(Two Boys and One Girl)
29years old
Ulcerative Colitis(severe whole colon)
Diagnosed March 2009
Allergic to Asacol, Lialda, and Imuran
Currently on Pred and Remi
Remi not going to well!(I think I had a reaction the first infusion they want me to try again)


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/7/2009 8:12 AM (GMT -6)   
UC will never completely go away, it cycles through periods of remission and flares. It sounds to me as if you need to add another drug to your regime to get you off of prednisone. You might be steroid dependent. I recommend you meet with your GI and talk about the next plan. The goal is to get off of steroids as soon as you possibly can.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/7/2009 10:15 AM (GMT -6)   
Are you on any other medications besides prednisone? If not, you should be.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


MITSY
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/7/2009 10:56 AM (GMT -6)   
Yes been taking ascol for about 3 weeks now and always ones to protect the stomach etc.

Thank you for replies so far
Andy

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/7/2009 11:07 AM (GMT -6)   
i am on 20 mg pred now, i dropped to 10 last week and immidiately got more blood and D, so for me anyways, my body is very dependant on pred right now
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
starting back on at least one remicade IV to see if i can get some relief next week,
most likely having j-pouch surgery this year, within a couple months, so i can be healthy for my baby, meet with my dr about it august 10!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/7/2009 11:29 AM (GMT -6)   
So you're not using any rectal meds? How much asacol are you taking? And I'm not sure what you mean by "always ones to protect the stomach etc." It's usually helpful to create a signature (like most of us have) that includes info like that, as it makes it easier for us to answer your questions if we know your history and what meds you're using. You do that by clicking on "control panel" in the blue bar up at the top of the page, on the left side.

Your UC will always be present (unless you have surgery to remove your colon, that is!)...it's just that you'll have cycles of remission (no inflammation and no symptoms) and flare. It can be very hard (or impossible) to come off of pred without symptoms coming back. However, you shouldn't stay on pred long term.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/7/2009 2:51 PM (GMT -6)   
When I couldn't get better at 25, my doc would go to 40 mg for a day or so, then taper from there. Maybe you're not taking enough to get you out of the flare.

And this is a chronic disease, it does not go away. Some months/years will be better than others, hopefully you'll be one who can achieve long remissions. I never completely went into remission until now with this Remicade. But after all these years, I can't help but still behave like someone with active UC, because I don't yet trust my body to behave.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/7/2009 2:52 PM (GMT -6)   
Peety, I hope you can learn some new habits soon! I'm so happy for you, though, that Remicade is workign so well. :)
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

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