Starting to worry....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/7/2009 2:34 PM (GMT -6)   
Hi everyone...
 
  I'm starting to get worried.... I was doing the taper off Prednisone and got down to 30mg and had some symptoms return... (pain, cramping, frequency) so I called my GI and he said to go back up to 35mg for a week then taper down 5mg a week... I'm getting nervous because I've been on steroids now for almost 2 months and with this slow taper I'll be on them for at least 6 more weeks.. I'm worried mainly about bone loss, and if I can't get off steroids.. I guess Remicade is my next step...   Just don't want to ruin my body and I'm only 45 years old....
 
 
        
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that)..lol.. with NO BLOOD!!! First time in almost 10 months!!!!!!!
 
Meds are: Prednisone Taper, on 30mg now for a week..., Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...                                           
 
http://www.myspace.com/77016897         


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/7/2009 2:38 PM (GMT -6)   
If you want to get off the pred, I'd definitely talk with your doctor about Remicade. I've heard from many people it put them into remission after one or two infusions, so then you'd be able to taper as fast as is safe for your body and not worry about UC symptoms coming back.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/7/2009 3:48 PM (GMT -6)   
I understand your worries, I was on pred for three months. It was not lovely but it did FINALLY get me out of a horrilbe flare that lasted almost a year. That was a year ago and so far I have not had another flare that bad that I had to take pred again.

I think that you are probably okay as long as you continue to tapper after you go back up to 35mg. I had to go up and down several times before getting off the pred completely. Take a mulit-vitamin and do weight bering exercise to help combat bone loss. Really all women should do that regardless of UC.
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/7/2009 10:47 PM (GMT -6)   

Thanks guys...   Ya, I'm probably extra emotional anyhow from the prednisone so that makes me worry even more than usual... lol...  I'm just gonna try and do that slower taper and NOT worry. It is what it is and at least I have NO blood, and my poopies are back to normal and only 1 to 3 a day.. I still have a LITTLE bit of cramping, but it's getting better..LOL But, I am eating a lot more due to the pred though and the moonface is unbelievable and I have a little hunchback AND a BELLY AND I've gained about 7 pounds!! OMG....  At least my husband assures me that he loves me even though I look like the pilsbury doughboy, and I feel now that he really does.. He's been incredibly supportive lately not letting me do to much.. but letting me do what I want.. He's seeing what I go through now and I think it has changed him.. for the better thank GOD...  Wow.. the font just changed while I was typing this and got way smaller.. interesting.. must be my computer....  Or it's the pred freaking me out... lolol..

 

 


Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that)..lol.. with NO BLOOD!!! First time in almost 10 months!!!!!!!
 
Meds are: Prednisone Taper, on 30mg now for a week..., Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...                                           
 
http://www.myspace.com/77016897         


PinkBible
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/7/2009 11:09 PM (GMT -6)   
I'm jealous lol...I've been on 40mg for 6 weeks now..and I've been on them since December just not that high a dose, before I got upped to 40mg I was tapering at a rate of like 4-6 weeks depending on how I was doing, so your taper rate is actually pretty good!

Bone loss shouldn't be a problem if you're only on them short term is what my doc says. I feel your pain about the moon face. I didn't get it until 2 weeks ago, but it came on fast. Good luck and I hope your symptoms don't come back when you taper! I know its discouraging. And once you get to 10mg my doc says the side effects decease dramatically...keep positive!

sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/8/2009 8:10 PM (GMT -6)   
When I was on pred I acted so out of it... most people thought I was high... I didn't get moody, I got hyper and giggly.. that I didn't even know I was fat lol.

I think as long as you're tapering you'll be alright. =)
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 8:09 AM (GMT -6)
There are a total of 3,006,019 posts in 329,292 threads.
View Active Threads


Who's Online
This forum has 161819 registered members. Please welcome our newest member, lionandmouse.
251 Guest(s), 8 Registered Member(s) are currently online.  Details
PeterDisAbelard., BossJ, cashlessclay, jberda1, Sherrine, Uniform Charlie, cppoly, iPoop