First real road trip since UC diagnosis

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Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/8/2009 6:02 AM (GMT -6)   
Hi everyone. My 7 year old daughter, wife and I are on our first real road trip since I was diagnosed with UC in 2000. Sure we have been on many overnight visits to friends and relatives and 2 cruises with the help of prednisone, but this is the first real road trip thanks to my jpouch and no medications. Before UC we enjoyed one to two week road trips around North America once or twice a year but had to cancel several planed trips in 2001 and 2 because of this disease, not anymore.

Last night we left Toronto right after work and we made it to Montreal. We brought our laptop and most hotels have wireless internet, a big change since our last road trip. This morning we are headed to Saint Andrews, New Brunswick on the Bay of Fundy. It is about a 10 hour drive from here. We have a whale watching tour booked for tomorrow. We are going to spend the next week exploring New Brunswick and Nova Scotia.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/8/2009 6:44 AM (GMT -6)   
Have a great vacation, Paul! That sounds like an amazing trip, and it's such a beautiful area!

Congratulations on being UC-free and free to travel.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/8/2009 7:24 AM (GMT -6)   

Paul,

Yippee!!!  I remember the excitment of that first trip post UC, have a great time!  Don't forget to share your pictures with us; I so enjoyed your Alaskan adventure.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5189
   Posted 8/8/2009 7:45 PM (GMT -6)   
Wow, that's great news, Paul! Enjoy!!!!!!!!! And if you can send us some new photos .... yippee!!!!!! / Old Hat (30 yrs with left-sided UC ... [etc.])

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/8/2009 8:26 PM (GMT -6)   
Thanks everyone. Today we drove from Montreal to Saint Andrews New Brunswick and we took the scenic route across the state of Main. Tomorrow we go on 3 hour whale watching tour in a tall sailing ship with the crew member dressed as pirates. My daughter should love it. Then we head up the cost a few hours to Alma New Brunswick. I’ll have lots of pictures to show.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/10/2009 8:54 PM (GMT -6)   
It has been a couple of days since my last update. The whale watching was great. We saw several fin whales, dolphins and seals, not to mention all the birds including an eagle. My daughter even got to steer the ship.

Today we went to Hopewell Rock and walked on the ocean floor on Fundy Bay at low tide. Fundy Bay has the highest tides in the world, as much as 50 feet. We have good pictures of both high and low tide.

Tonight we made it to Lunenburg Nova Scotia. Tomorrow we are going for a 2 hour cruise on the Bluenose II. The original Bluenose was very famous back in the 1920’s and 30’s. It eventually sank and an exact replica was built in the 1960’s, the Bluenose II. It is a National symbol for the Province of Nova Scotia. An image of it is found on the provinces license plates and is stamped into the Canadian dime. It is a fishing schooner with tall sails. I look forward to sailing on it.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/10/2009 9:24 PM (GMT -6)   
Your vacation sounds beyond wonderful. You deserve it. I am inspired once again by this board that someday I can live a 'normal' life and do exciting family stuff like this! THANKS!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/11/2009 8:05 AM (GMT -6)   
Oh how nice! Definately share pictures if you can! I am so happy that you can get out there and enjoy yourself properly again. You have been down such a tough road and you deserve this happiness and freedom! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/11/2009 8:17 PM (GMT -6)   
Thanks Sherry,

Today was great. It rained but it held off until after 3 when we left Lunenburg. The cruise on the Bluenose II was great but it was foggy. Once at sea we couldn’t see a thing. The winds were so calm that we returned to port with the sails up. They told us this was the first time in 6 years. It allowed us to get some good pictures of the ship after we returned.

We then left for Peggy’s Cove, a very beautiful place. We saw a monument in memory of a Swiss Air flight that crashed into the Atlantic near Peggy’s Cove about 11 years ago. The rain stopped just before we got there. We then went on to the famous light house. The fog rolled in and out but we did manage to get some good photographs.

Tonight we are in Bedford, a suburb of Halifax Nova Scotia. We plan to tour Halifax tomorrow before heading to Cape Britain Island.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/11/2009 10:25 PM (GMT -6)   
Excellent Paul! Nobody deserves a great road trip than you and your family! Enjoy, and we love details and pictures!
Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/11/2009 11:12 PM (GMT -6)   
That's great that you're having such a fantastic time! I'm a relative newbie to UC, so I missed your struggles, but I am still glad that you had a successful surgery and are back to enjoying life! It gives me a lot of comfort to read stories such as yours, knowing that if I have to have surgery, it'll be ok!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/14/2009 9:15 PM (GMT -6)   
Carol, did you change your Healingwell name? I didn’t notice right away.

It’s been a few days since I reported back to you guys. The last 2 hotels we stayed at didn’t have wireless internet. We toured Halifax including the Halifax Citadel and the Maritime Museum of the Atlantic. The museum had a nice display about the Titanic. Halifax played an important roll in recovering debris and bodies. about 150 bodies were buried in Halifax. They had some original artifacts from the Titanic.

The next day we made it to Baddeck on Cape Briton Island Nova Scotia. We visited the Alexander Graham Bell National Historic site. He had a summer home in the area which is still owned by his great grandson. Bell did a lot of research at his summer home. He is known for a lot more than the telephone. He was involved with aviation. he and his team are responsible for the first powered flight in Canada in 1909. The plane was called the Silver dart and took off from a frozen lake next to Baddeck in February 1909. He also developed the first hydrofoil boat and set a water speed record that stood for 10 years. When Bell died he was buried at his summer estate in Baddeck.

We then set out for a day on the Cabot Trail. It is a magnificent drive along the coast with beautiful scenery. The weather was perfect. When I get home I’ll post some pictures. We then spent a night in Louisburg Nova Scotia. We then went to The Fortress of Louisburg. It is a reconstructed 18th century French fortress. The site is huge. We then went to Glace Bay to the site that Marconi transmitted the first radio signal from North America to Europe in 1902.

Tonight we started our journey back home to Toronto with a stop in Truro Nova Scotia. Tomorrow we drive to Montreal.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/16/2009 7:13 AM (GMT -6)   
That was a long drive to Montreal. Actually we are in Dorval near the airport. Jets are flying over our hotel every few minutes. On the way here we stopped at Hartland New Brunswick to see the longest covered bridge in the world at 1282 feat. We also stopped at Grand Falls NB to see the falls. Today we have a 5 hour drive home to Toronto and will take our time.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/16/2009 7:39 PM (GMT -6)   
We finally made it home today at about 5:00 pm after a short stop in Kingston Ontario. It was a long trip and we are exhausted. Both my wife and I have to go to work tomorrow morning. Our trip odometer showed that we drove 5,085 km (3160 miles). My new jpouch functioned perfectly. In fact most pit stops were for my daughter and wife, not for me. A year ago I could not have done a trip like this. It will be a few days befor I have any photos posted.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5189
   Posted 8/16/2009 10:14 PM (GMT -6)   
Bravo, Paul! So glad you recovered from the 2 surgeries + fissure ordeal in time to enjoy a real summer vacation. We're all looking forward to your photos ... / Old Hat (30 yrs with left-sided UC ...[etc.])
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