I need a new medication!!!

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kelli_C
Regular Member


Date Joined Jul 2009
Total Posts : 130
   Posted 8/8/2009 1:33 PM (GMT -6)   
I go to see my UC doc next week, due to a flare-up.  Since i have no medication at the moment, I am going to obviously ask for a prescription.  Here's the issue--i'm poor!!!  I've always been on Asacol, and that stuff is expensive!  So I'm wondering if anyone has expereince with any similar mesalamine oral drugs or ozasalazine that're cheaper than asacol. 
 
I tried sulfasalzine when i was first diagnosed, but it made me start throwing up, so I'm pretty sure I'm intolerant to that.  I want to be able to get a prescription for a drug that has a GENERIC available, but perhaps works like asacol...any suggestions for drugs I should ask my doctor about?  Thanks!!!!!!
Ulcerative Colitis, dx in 1998 at age 18
Rowasa morning and night, Asacol 2x4
Allergic to Sulfasalzine
Now I take no meds or supplements (but some asacol on-hand if I feel a flare-up coming on)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 8/8/2009 1:39 PM (GMT -6)   

http://www.pgpharma.com/pdf/PAP_Instructions.pdf

http://www.canasacare.com/assist_program.php?lang=1

You can get into these programs if your doctor will fill out the patient assistance forms. I qualified for free asacol and canasa. It has made my life so much less stressful. Goodluck.


Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/8/2009 3:28 PM (GMT -6)   
i take Lialda...it's a Mesalamine... there's a program that you get a card from it and it basically makes it so you won't pay more than 25 dollars for it.
Kara, 22F Married. 
Previously- Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Latest: Had first Remicade infusion on 07/30/09, next scheduled for 08/13/09. Doc. talking about lowering Lialda to 2 a day or off completely. Formed stools...usually 1 or 2 a day :D
Medications: Lialda 2 twice a day, Remicade, Protonix.
I am so sick of this disease!
 
 


NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/8/2009 7:47 PM (GMT -6)   
sweet melody - is that card (for the Lialda) a one time use or does it last for an entire year? Thx...
Lialda 4x a day
Rowasa Enema 1x at night
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes Vitamin D, Vitamin C) 1x a day


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 8/9/2009 12:09 PM (GMT -6)   
There is no generic Asacol. 3 companies started marketing generic Colazal (balsalazide disodium) in 2008, but some of us had trouble with it-- such as headaches. Lialda & Apriso are the newest oral 5-ASAs available; they have "extended-release" properties = fewer pills required daily. All these meds are outrageously expensive w/o applicable RX insurance so it's best that you apply for pharma assistance ASAP if you qualify. See the post by UC Wife in MD re takedown-- because she's offering to ship her husband's unused generic Rowasa retention enemas (mesalamine liquid) to a UCer lacking insurance! / Old Hat (30 yrs with left-sided UC ... [etc.])

sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 8/9/2009 12:22 PM (GMT -6)   
NiRo it lasts forever.. as far as I know. And actually I just called the number it told me to and I only had to give it to my pharmacy ONCE and they have it in their system, so I just keep it in my wallet.

Looking on the back of the card it says: call the Lialda Pharmacy Card program at 800-416-8466 (8:00am-8:00pm EST Mon-Fri)


but the card i got was from my GI... and I had to ask for it... it has all those fun ID numbers on it to activate it.. so either maybe call that number and see if they can send you a card or something... or ask your GI.
Kara, 22F Married. 
Previously- Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Latest: Had first Remicade infusion on 07/30/09, next scheduled for 08/13/09. Doc. talking about lowering Lialda to 2 a day or off completely. Formed stools...usually 1 or 2 a day :D
Medications: Lialda 2 twice a day, Remicade, Protonix.
I am so sick of this disease!
 
 


UC Wife in MD
Regular Member


Date Joined Aug 2007
Total Posts : 63
   Posted 8/10/2009 7:26 AM (GMT -6)   
Yes, Kelli_C. We would like to help out if needed.
 


kelli_C
Regular Member


Date Joined Jul 2009
Total Posts : 130
   Posted 8/12/2009 9:31 PM (GMT -6)   

Thanks UC_Wife!  I do actually have insurance, but it is still very expensive.  It's great that they have the 90-day supply program, but it's still a lot of money to front, you know?   

I haven't gone out the those websites yet, but thanks so much for passing that info along!  Sounds like I'll also be asking the doc for a way to make these meds less expensive. 


Ulcerative Colitis, dx in 1998 at age 18
Rowasa morning and night, Asacol 2x4
Allergic to Sulfasalzine
Now I take no meds or supplements (but some asacol on-hand if I feel a flare-up coming on)


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 8/13/2009 5:54 AM (GMT -6)   
Are you sure you are allergic to sulfasalazine? I became quite nauseous when I first started taking it. If I didn't have a strong stomach I probably would have thrown up too. That problem was solved when I started using the enteric form of sulfasalazine. Been fine with it ever since (and there is a generic version available).
Diagnosed with UC in 1990.
Current Meds: Sulfasalazine & Folic Acid.
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.

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