Just had takedown!

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UC Wife in MD
Regular Member

Date Joined Aug 2007
Total Posts : 63
   Posted 8/9/2009 8:44 AM (GMT -6)   
Hey everyone.  I have not posted in quite a while since my husband had his emergency colectomy (3/08) and eventual J-pouch surgery.  I just wanted to share that he is doing great since his takedown surgery on Monday 8/3 and is already back to eating pizza.
Now that he's all back together we were boxing up his UC/ostomy stuff and would like to "share the wealth".  We have quite a few leftover boxes of Rowasa (retention enema - Generic brand) and appliances and would hate to just throw them out.  I know medical places don't really take donations of this stuff (at least that's what we've been told).
If there's anyone on here that is without health insurance and needs Rowasa or ostomy supplies, let me know and we can see what we can do.

Regular Member

Date Joined Jul 2009
Total Posts : 29
   Posted 8/9/2009 10:53 AM (GMT -6)   
I dream of being able to eat pizza. I'm glad your husband is doing well.
2000 - Diagnosed with UC
Asacol - didn't help - quit taking after 8 months.
Prednisone for 1 year - weakened my teeth to the point that some broke - quit taking.
2004 - Remission for 9 months! Woot!
2005 - Began taking Strattera for ADD and colitis went back into remission!
June 2009 - off the Strattera and colitis is back.
July 23, 2009 - Canasa suppositories - 1000mg x 2 a day

(Zoloft 150mg/daily; Xanax .5mg x 2)

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5191
   Posted 8/9/2009 12:18 PM (GMT -6)   
Congratulations to your hubby: fantastic news!!!!!!!!!! RE his unused med-- see Kelli_C post "I need a new med!" Here is a UCer who lacks insurance & med and is flaring. Maybe you can hook up. / Old Hat (30 yrs with left-sided UC ... [etc.])

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 8/9/2009 5:47 PM (GMT -6)   
You're right, things have to be handled very specially to be donated and state law has to allow it. My state has finally adopted a way to donate unused drugs at institutions (like from nursing homes) to free clinics, but a pharmicist has to touch them to be sure they're good.

I hope you can find someone, but keep it on the down low ...liability issues...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow

Elite Member

Date Joined May 2003
Total Posts : 31006
   Posted 8/9/2009 7:47 PM (GMT -6)   
Hi UC wife....awesome news your husband has gone through the surgeries and is reaping the benefits of feeling so much better.

Thank you for letting us know how he's doing.

Be well!
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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