hey so my wife and i have decided, i am going to have the surgery! i am meeting with my gastro today at 4 to get the ball rolling and get reffered to the surgeon, Dr Craig Johnson in tulsa, ok...i am plain ole excited now! its a hard decision to make but now that i have made it, i am positive and just going to hope for the best...
i met with a friend yesterday that had the pouch surgery 25 years ago, back then it was experimental and they did the whole thing in one surgery, her pouch failed of course since they did it in once surgery.. but she now has a permenant ileostomy and loves it..said it was the best decision she has ever made...
also i was watching videos about the ostomy and these people showed the stoma to be like 2 inches long and as wide as your thumb, i was happy to know that the ileostomy is much smaller =)
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
starting back on at least one remicade IV to see if i can get some relief next week,
most likely having j-pouch surgery this year, within a couple months, so i can be healthy for my baby, meet with my dr about it august 10!