Flare up 24 hours away from Home without no Medicine!

Anyone have the same experiece?
0
Yes - 0.0%
3
No - 60.0%
2
Somewhat - 40.0%

 
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Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 8/10/2009 12:11 PM (GMT -6)   
Okay this story is shocking and makes me feel like Lance Armstrong because the pain and suffering i went through i dont think anyone else could had gone through..(Ive had UC for 2 years)

So 1 Month ago i had to visit India because my grandma had passed away and me and my family had gone to pay our respects, during that time I had no flare ups nor I had any pain with my stomache and my stool was actually formed without no blood; this made me very happy because i was worried if i go to india and get sick im pretty much dead.

So the weather in india was 45-50 degrees with humidity up the ass and the village we were staying in india the electricity would go out meaning the fans/water would turn off and you would maybe have to wait minutes to hours or even days for the elec. to come back.. it was frickin horrible.

So 18 days had gone by and my stomache was still fine, and the 19th day we were heading back to winnipeg and i was happy as ever....

The day i woke up when we were leaving i got a stomache pain, quickly rushed to the washroom.. Diahreah with blood..quickly after started puking, dizzyness and my body came to the state of shock..

So heres the scary part.. the Airport from our village was 8 hours away and it was 9am and our flight was leaving at midnight and also we could not extend our airline tickets because we had emergency visas (our travel agent in winnipeg screwed us and we had to apply for emergency visas). So i was quickly addmited to an indian hospital and all i remember was being hooked up with countless bottles of Glucose and antibiotics, by 3pm i was discharged and still feeling like crap with the outside temp being 48 stuck in the car on my way to the airport with an 8 hour drive...

When we got to the airport it was 10 30.. me and my family quickly got our suitcases n tickets n got on the plane.. now the drugs that were injected in me started to ware off and i started to feel like crap again.. and i couldnt tell the stewardess because i woulda been a threat to other passengers.. so nice me traded my first class tickets along with my lil brother for the last 2 seats in the back because i thought it would be a good idea and i would be able to single myself out which worked out...

The flight from delhi to london was 8 hours.. most horrible experience ever.. the next 8 hour flight was from london to toronto which was even more horrible because i kept using the washroom and when we got to toronto it was a 4 hour stay and all i remember was sleeping on the floor by the gate number till it was our time to departure..

When finally i got home to winnipeg i was admitted to the hospital.. i was delusional and thought i was still in india.. spent 10 days there, had 3 pints of blood transfused and was told if i came a day later i would a had surgery to take out my bowel completely.

Now im still recovering, taking asacol, prednisone, and iron pills.. still feel like crap, killer stomache pains with cramps and bloating..
it sucks cause im 21.. plan to graduate next year with my B.COMM;finance, work for a great company but havent been back to work cuz of this ***in disease...if you knew me 3 years ago u never woulda guessed this would happen to me..

oh yeah and the weight and muscle i lost pisses me off the most cuz i got to a point in my life and body where ppl were jealous n loved how i looked.. now im a skinny shrimp again!!!

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/10/2009 12:16 PM (GMT -6)   
Sorry to hear you had such a horrible experience. Were you tested for C. diff or any other sort of infection? It seems odd that a UC flare would have had such a sudden, severe onset. It could have then triggered a flare, and you are now experiencing that.

Hope you get better soon.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 8/10/2009 12:24 PM (GMT -6)   
No, i ate properly and didnt drink any of the tap water.. always bought bottled water.. the doctors knew of my UC as soon as i got there and hooked me with pain killers/glucose/antibiotics.. yah it was strange because i was experiencing diarrhea for a week but it was told because of the weather and environment change.. everyone who comes out of town and goes to india will 100% experience diarrhea.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/10/2009 12:34 PM (GMT -6)   
Lavi...Who is your doctor?

Is your UC throughout or limited?

Hope you feel better soon....
q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 8/10/2009 12:38 PM (GMT -6)   
My Family Doctors name is Ismail Mohammed, and my GI specialist is Dr.Lau, it was Dr. Goldenberg but hes probably the biggest idiot i met in my life and i wonder what medical experience he really has.

But my current GI Is awesome, he actually cares and talks to you about the problem.
What do you mean by throughout or limited?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/10/2009 12:45 PM (GMT -6)   
Who is your current GI at this time?

I mean is your UC throughout your colon or limited to the rectum or up to the sigmoid or wherever?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 8/10/2009 12:55 PM (GMT -6)   
My current GI is Dr.Lau.

Yes my UC is limited, when i had my colonoscopy done 2 years ago they found only certain areas within my colon that was infected.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 8/10/2009 1:00 PM (GMT -6)   
Since UC starts at the rectum and goes upward....is yours limited to just the rectum or to where?

You should ask Dr. Lau to put you on rectal meds....I've heard he's resistent to that suggestion , however.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/10/2009 2:05 PM (GMT -6)   
What would happen if due to your hospitalization you had overstayed your visa? There must be provisions for those kinds of medical emergencies I would think. Glad you made it back. Wasn't there a bathroom in first class? I probably would have stayed in first class if near a toilet because the seats actually lay down and you could have tried to sleep. What a crazy ordeal!
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 8/10/2009 3:22 PM (GMT -6)   
if i would have stayed then it would be too much work to get another visa stamp from canada while i was in india and the documents that were needed to send back n forth.. i really just wanted to get the hell out of india. Yah there was washrooms on first class but since theirs limited ppl in first class and only 2 stewardess working first class they would have known what was going on with me.

Quincy, too tell you the truth i really dont know. thats a question i will ask.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/10/2009 4:25 PM (GMT -6)   
For future reference - I have been super sick on planes, running to poop or throw up the whole flight. The flight attendant was sitting near the toilet b/c it was an empty flight, and saw me each time. They never asked me about it or anything. I did mention to one that I had a medical condition and wasn't contagious. Ive never had one care that I was sick beyond saying "feel better."
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/10/2009 4:50 PM (GMT -6)   
I haven't flown since I've been sick...

But if I do, and I feel sick, or think I'm going to, I'm bringing a note from my dr. I already have a card that explains a MN statute here that explains that I have an illness and requires the card holder to be able to use a bathroom regardless of where it is or who it's for.

Sorry to hear your flight was so bad. I hope you feel better fast!
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/10/2009 4:56 PM (GMT -6)   
Sorry to hear your story. Was your flare triggered off by the hot weather?
I have been flaring again since late July and I believe it's because of the record high temperature in Vancouver at that time. It was 34 degrees 3 days in a row and I felf sick and fatigue. Then I started to have bloody diarrhea 10 times a day.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 8/10/2009 9:28 PM (GMT -6)   
When traveling pack your UC meds first-- even if you're feeling fine. UC can flare up at any time! Glad you made it back to Manitoba on schedule-- that was the best thing to try to do in your circumstances. Hopefully, you can now get the med(s) you need to bring your flare under control soon. It's amazing that you managed to walk thru airport Customs etc. in such a weak condition; that can be so tiring, even for healthy people. / Old Hat (30 yrs with left-sided UC ... [etc.]) P.S. I got violently sick once at Roissy airport (Paris) when it was hot & our transatlantic flight could not depart due to a wildcat air traffic controllers' strike. A crummy experience one hopes never to repeat!

Post Edited (Old Hat) : 8/10/2009 9:36:08 PM (GMT-6)


jerkygirl
New Member


Date Joined Jun 2009
Total Posts : 17
   Posted 8/11/2009 4:34 AM (GMT -6)   
oh how crappy. What are the rules regarding taking the meds international? I ask because I am about to go to Egypt,Spain and UK (eeep I hope the heat is not making us flare!)
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