Anyone been referred to a rheumatologist?

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twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 8/10/2009 2:56 PM (GMT -6)   
I recently had a bone scan that showed osteoporosis from the prednisone. My GI told me to call my primary to get referred to someone and he referred me to a rheumatologist. I was wondering if anyone else has seen a rheumatologist for this. If so, what should I expect? Also, if anyone has a Dr recommendation in the Atlanta area, I'd welcome it. I just scheduled an appt with Dr Fishman near St. Josephs but he can't see me until late Sept. Fortunately, I don't have any pain or symptoms that I know of.

At least I'm going to max out my deductible this year!!

Thanks.
Dx w/ UP in 2005; Dx with UC in 2008
Was taking: Lialda and Mesalmine Enema (1x per day); Colazal (9 per day);
Now Taking: Pred-a 10 mg/day down from 40mg but experiencing bone loss; Apriso - 4 per day; mesalmine enema nightly
Tricor for Cholesterol
Male; age 43; Located in Atlanta


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/10/2009 3:12 PM (GMT -6)   
Yes, I was not referred because of bone loss though. Luckily, I have only been on pred once.

I was referred so that I could be tested to rule out other autoimmune diseases such as Lupus and Arthritis. The rheumatologist was wonderful at explaining the auto-immune response that causes all these wonderful diseases (including UC). He did a very detailed blood test that revealed I am ANA positive - which let us know that I definitely have an out of whack immune system...helped shed some light on the disease for me and also gave me some good information! I hope your visit will be as good as mine was!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16738
   Posted 8/10/2009 3:57 PM (GMT -6)   
I would really like to see one. I am always worried I will end up with other issues like MS. Let us know how it goes.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 8/10/2009 4:32 PM (GMT -6)   
Yep, me too. I was sent because it seems like my UC and body pain came about the same time. So when I flare intestinally I flare in my bones as well. Oh yeah, my eyes too...very weird to me.
600 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 8/10/2009 6:14 PM (GMT -6)   
festeris, off topic, but are you really on 600 mgs or Imuran?
Age 34, Diagnosed with UC September 2008
Current Meds:
Started Azathioprine 100 mgs 6/22/2009 and Apriso 4 tabs daily 6/11/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin
Also tried: Remicade, Asacol, Rowasa, Cantasa, Prednisone 2 times for about 3 months each


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/10/2009 6:34 PM (GMT -6)   
Jen O said...
festeris, off topic, but are you really on 600 mgs or Imuran?


shocked

Got to be a typo.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/10/2009 8:27 PM (GMT -6)   
I've been referred to one, but because of the arthritis in my knees which I think is only an inflammatory thing and nothing to do with my bones... She didn't explain much.

She put me on Sulindac, bad idea. It didn't work well enough anyways.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/11/2009 8:35 AM (GMT -6)   
festeris - it is not uncommon to have UC and irisitis or uveitis in the eyes...the same autoimmune response causes both...it can also cause body aches and joint swelling...all forms of autoimmune caused inflamation...I also have irisitis...I actually had that years before any UC symptoms. I was about 25 when the eye inflamation came on, however, I have it VERY much under control thank goodness!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 


festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 8/11/2009 9:36 AM (GMT -6)   
Jen O said...
festeris, off topic, but are you really on 600 mgs or Imuran?

Hi Jen O, NO typo!
 
From what I understand they measure dosage proportionate to your weight and I'm 265 lbs. I'm concerned regarding this especially now that I've decided to undergo Remicade treatment on the August 17th.
 
The worst part is my Doctor is fairly certain that due to the agressive nature of my UC I will NOT be able to STOP the Imuran during treatment of Remi and the threat of Cancer has got me scared *#$%less!
 
Don't mean to hijack a thread...just answering a question...thanks! 



600 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly

Post Edited (festeris101) : 8/11/2009 8:40:52 AM (GMT-6)


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/11/2009 10:12 AM (GMT -6)   
festeris - That seems to be a crazy high dosage even at 265lbs. I have heard 1 mg per 1 pound of body weight is even considered high...that would put you at 265 mg not 600 mg. Are you have regular blood count tests done? I would be very concerned at that dosage. Are you going to taper down to a lower dosage at some point? I hope that the Remicade helps you. I am so sorry your UC is so agressive!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 


festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 8/11/2009 12:33 PM (GMT -6)   
thatfield said...
festeris - That seems to be a crazy high dosage even at 265lbs. I have heard 1 mg per 1 pound of body weight is even considered high...that would put you at 265 mg not 600 mg. Are you have regular blood count tests done? I would be very concerned at that dosage. Are you going to taper down to a lower dosage at some point? I hope that the Remicade helps you. I am so sorry your UC is so agressive!

Duh! I just checked the bottle and I'm actually taking 6/50mg. a day! Not 600mg. only 300mg. wink Thank God! Should I still be alarmed? Will this be a problem with the Remicade?
 
Thanks!
600 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/11/2009 4:14 PM (GMT -6)   
festeris - Whew - that sounds much better! I was worried for you! :) I know that several people take both Imuran and Remicade with success. I don't have any first hand experience with either though. I am hoping the very best for you, sounds like you could really use some relief!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day!
Canasa daily
Probiotics Daily
 

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