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UC_Hater
Regular Member


Date Joined Aug 2009
Total Posts : 45
   Posted 8/11/2009 4:28 PM (GMT -6)   
Hello. 30 YO male with UC. Forgive me if I mis-speak...I'm still trying to get all this figured out.
 
Diagnosed by a colorectal surgeon back in October 2008...started on Asacol 2x3 and Canasa sup. once daily...colonoscopy was clean. Went into remission around March and then it came back with a vengeance around May. Colorectal referred me to a GI...immediately upped Asacol to 3x3, continued Canasa and started on proctofoam. Currently on same dosages and things are more manageable but still far from ideal. Meds definitely starting to add up $$$.
 
To be honest I'm just now starting to get serious about everything...I guess I just figured it would go away and it would not be something I'd have to 'deal with' on an ongoing basis...but its almost been a year. So just putting this out there. I'm happy to find this forum and hope I can gain perspective and a little advice from others like me.
 
Thanks.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/11/2009 4:50 PM (GMT -6)   
Hello and welcome! Sorry that you're here though...UC isn't fun!

A great website to learn about the different medication options for UC is the Crohn's and Colitis Foundation of America website (www.ccfa.org). I did a ton of reading just after I was diagnosed, as knowing as much as I can helped me come to terms with having this disease. I guess I am fearful of things that I don't understand!

How extensive is your UC? Did you have the c-scope before or after starting on the Asacol and Canasa? Are things continuing to improve, or have you kind of stalled out on improvement? If so, you may want to consider upping your Asacol doseage up to 12 pills daily (of course, consult your GI about this). You may also want to switch to a mesalamine enema instead of the suppository, as the enemas reach further into the colon.

Hope that you get better soon!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


UC_Hater
Regular Member


Date Joined Aug 2009
Total Posts : 45
   Posted 8/11/2009 5:18 PM (GMT -6)   
Up to this point its proctosigmoiditis and it appears I've kind of stalled out on progress. My doctor recommended the enema but I just could not keep it if you know what I mean. sad
 
Thanks for the info on websites!

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/11/2009 7:02 PM (GMT -6)   
Welcome to the forums.

Figure out how to do the enemas. It's not fun, but a necessity. May as well treat the area directly rather than taking the scenic route, lol. I can't speak for proctofoam, but only for hydrocortisone enema and rowasa. The following pertains mostly to hydrocort enema since it worked best for me.

The last several years I have learned how to get the best benefits out of them by getting them to stay in. Few tips I can give is don't use the whole thing. Alot of people worry about getting the whole thing in there but end up expelling it anyway so that money goes down the toilet. Use 1/3 at a time. Yes, I keep using that bottle until it is empty. You can take one of your previous empty bottles and fill it with some warm distilled water and use it first to see if you are gonna poo it right back out or if its going to be retained. If its holding good just jump up on the toilet and get rid of the water then do the med enema. If not, void it and put some more warm water in and see how it goes.

Warm up the enema first in sink with hot water. USE ALOT OF A&D ointment on the tips before you even try to insert it! Otherwise you may add more irritation.

Can try different positions to see which works best. I usually stay on my left side with right leg bent up on insertion and straighten that leg out and hold there for 15 min or so. May flip over on back for another 10-15 minutes then i am usually good to go, which is usually on into the bed. I stay in the bathroom and do this to avoid the stress of having to jump up and run to the toilet.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA

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