Posted 8/12/2009 2:50 PM (GMT -6)
I have been on it since about April. I feel that same about the BM's. Amazing feeling. The closest to feeling "normal" (before UC) I have no negative side effects as of now but who knows what havoc it is playing on my insides (bones etc). Right now, I am just happy to be in a type of remission and hope to get off of it..
Chris
DX with (pan colitis) UC 9/02 while pregnant
Calcium multivitamin
Iron (alot every day.. perpetually anemic)
Librax, 3x day
Mild bronchial asthma too
6MP 75mg started beginning of May 09
Entocort 2 3 mg tabs day

Posted 8/12/2009 3:34 PM (GMT -6)
I was on Entocort for more than a year. I got osteoporosis with a leg fracture and avascular necrosis of the shoulder.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 

Posted 8/12/2009 3:42 PM (GMT -6)
I've been using it for a couple years straight. It works wonderfully and I've had zero side effects.
Posted 8/12/2009 7:19 PM (GMT -6)
I really want to go back on it. I am rock bottom now, all the worst D and bloating is back and I am out of options besides entocort. Going back to the GI soon...
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

Posted 8/12/2009 9:03 PM (GMT -6)
Ive been off and on, more on time then off for 7 years now. And been on it continuously for some time over a year and a half or so. Not always at incredibly high dosages, but always started that big. Im pretty dependent even if on just 5mg, even with humira and methotrexate and all the normal gang of other meds. Ive never had any problem with prednisone or budesinide(entecort) budesinide is close to prednisone, just known for less side effects. I have no side effects anyways. Anyone taking it a long period of time though should atleast take an over the counter Vitamin D and chew say 3 Tums a day, because of the calcium, and that will help quite a bit with the bone issues.
Posted 8/13/2009 6:08 AM (GMT -6)
Well, I have bone loss too - and I am a fit athletic 52-year-old male. 7 steroid doses over the past 6 years including pred, enemas, and entocort, plus years of malabsorption of everything, I guess.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

Posted 8/13/2009 6:21 PM (GMT -6)
I was on Entocort for over a year starting last year. It got me emotionally more than anything when I was nearing 10 months of taking 3 pills a day. It was rough...but my guts were better than ever.

I agree with the slow taper mentioned above. I tapered too fast, and it wasn't good! I went down one pill and stayed there for a couple weeks. I just went with what my body could do. I was on one pill for a long long time. ((I should say that I started tapering after a year on the dose of 3/day))
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

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