Is bleeding okay? I want to get pregnant soon...

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TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 8/12/2009 12:43 AM (GMT -6)   
I read kops2da/ElaineNY's post from last month:
"Her gastro said if I was not bleeding enough to be anemic (keep up the blood tests) not to worry about bleeding".

Do I have to worry about a little bleeding? I read on this board that I shouldn't get pregnant while in a flare. Other than a little blood a couple days a week I have no other symptoms. Does this count enough to hold off on getting pregnant???

I would like to get pregnant soon and would rather not be on a ton of meds. I am considering a fecal transplant next month.

Any advice is appreciated.

Here is what I am taking now:

Canasa 1X or 2X daily

Upon arising: Freeze dried wheatgrass equal to 2 oz fresh
1 oz concentrated Aloe (no aloin)
with proprietary blend 120 mg of slippery elm, german chamomile flower, marshmallow root,
borage leaf, peppermint, pau d' arco bark, blessed thistle leaf, ginger root

With breakfast: Boswellia 500mg 65%-70% acids
Turmeric extract 600mg 95% curcumin (plus 200mg tumerica root)
Fish oil 2000mg
Prenatal multi and zinc and pycnogonol

With lunch: again Boswellia 500mg

With dinner: again Boswellia 500mg

Before bed: Wheatgrass 2oz , aloe 1oz , turmeric
enteric Fish oil 1000mg
enteric 50 billion probiotic: Ultimate Flora Critical Care
plus L-glutamine 1000mg

Bedtime: Vitamin E enema 8000IU daily or ever other day

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 8/12/2009 12:49 AM (GMT -6)   
Hi...the bleeding states you're flaring and the mucosal layer tissue is extremely fragile..unless you have a fissure that you tear open after bms?

I would be more worried about the other supplements you're taking...read ALL the warnings about them in relation to pregnancy.

For one, ginger rood will cause uterine contractions possibly causing miscarriage.

You have time to do your homework....

You should also get on a better rectal med such as the retention enemas rather than Canasa.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 8/12/2009 12:53 AM (GMT -6)   
Thank you Quincy, that helps. I will look into retention enemas.

TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 8/12/2009 1:00 AM (GMT -6)   
Another question. Salofalk enemas are okay while pregnant?
I just got off three months of Colazol. It didn't work for me this time like it did last time.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 8/12/2009 1:16 AM (GMT -6)   
Many have taken them through a whole pregnancy and maybe you may just need maintenance of twice a week....depends on if you flare or not.

The oral 5ASA meds you should be on are ones that hit the terminal ileum and upper colon...and since they dissolve there, you shouldn't need a large dosage since the part between the rectum and cecum are clear. You just want enough to keep inflammation as calm as possible.

Pregnancy is a hormonal up and down....a perfect brew for a flare.

I've not been pregnant and made a conscious choice to not do so.....but you should realise that you need to learn to deal with UC because it's a reality of your life. If you don't have the tools to know what to do, you have the possibility for the between area to become just one big flare.

5ASA meds are also first-line with the lowest side-effects if one can use them. Colazal isn't necessarily the best med for you possibly, but you should be on the enemas...4g to start and then lower to 2g for maintenance.

Make yourself options for when it's too late, you'll be desperate and not know what to do. And if you worry about being pregnant, I hear that once babies are born it's no walk in the park.

You have the opportunity to get real smart about it all....just my perspective since you have an incredible want to be pregnant.

quincy
6
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/12/2009 10:07 AM (GMT -6)   
Many, many, many women have been on 5ASA meds (oral and rectal) throughout pregnancy and the babies have been fine. I'd strongly recommend you consider using both during pregnancy to prevent a flare from occuring...that's the worst thing to have happen during pregnancy and has a greater chance for causing problems for both you and the baby than the 5ASA meds. I ditto quincy's suggestion to do a lot of research on all of the supplements and make sure none of them are potentially harmful. Give your OB a list of them as well.

My first flare started about 4 weeks after I had my son, who is almost 10 months. As you can see in my sig, it took until May for me to be in remission. Of course, I wasn't diagnosed until January, but it still took me a long, long time to get in remission. I'm still not sure how my husband and I made it through those few months when I was so, so, so sick and had a newborn to take care of. So you really, really, really want to do everything you can to prevent a flare after delivery, too.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16282
   Posted 8/12/2009 10:18 AM (GMT -6)   
My GI was always the opposite. She was always saying how we have to get the bleeding to stop. I guess that was the main concern for me, even before it was really bad. I did however end up waiting too long without adequate treatment and beecame severely anemic and felt awful. If I were you, I would try to get the bleeding to stop, especially if you can do so with some kind of rectal meds, then try to get pregnant. It sounds like you're doing pretty well and maybe you just need a little push to reduce the inflammation. Goodluck getting pregnant!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Canadian Chick
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 8/12/2009 10:28 AM (GMT -6)   
I would wait unti you're either symptom-free or your GI gives you the go-ahead. I wish I had waited... I just had some blood when we conceived and it spinned me into such a large flare that I ended up in the hospital for 5 weeks and on Remicade. I'm not saying this will happen to you - as my GI says a third will get worse during pregnancy, a third will stay the same, a third will feel awesome. For me, it was just awful waiting the 9 months before knowing, for sure, that the drugs he was exposed to in-utero didn't affect him. (They didn't, he's a perfectly healthy little boy.)  This is, of course, just my opinion based on my experience.

flufumps
Regular Member


Date Joined Jul 2009
Total Posts : 25
   Posted 8/12/2009 2:22 PM (GMT -6)   
I have been advised to wait until i'm not flaring before getting pregnant as pregnancy can send you either way, for some pregnancy sends people into remission but for others it makes it worse.

As it is i did get pregnant last October, the UC was undiagnosed at that point but was flaring and got worse when i became pregnant, i then had a miscarriage in December, no-one knows for sure what caused it to happen, it could be my clotting problem (but i was on fragmin injections so it shouldn't have been that), the fact i had untreated UC or just one of those things but i was left heartbroken and am not willing to risk another pregnancy whilst flaring just in case.

I know people have had healthy babies whilst flaring but equally others haven't, you really must look into it and weigh things up carefully. Good luck whatever you decide to do.

TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 8/16/2009 2:05 PM (GMT -6)   
Thanks everyone, I'll do my best to wait it out.
TPT
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