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huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 8/12/2009 10:07 AM (GMT -6)   
I  was originally diagnosed with UC and switched to crohn's disease. I am currently taking 20 mg of prednisone and 4 lialda with 75mg of 6MP. I was reading about the cecal patch and that kinda sounds like me. I also would like to know if any of you think I should call the doctor since I am now experiencing muscle pain and what seems like bone pain. i also am experiencing alot of hair loss still have a sharp almost throbbing pain in my right side and sometimes everywhere. I am so confused and tired of this disease. Any suggestions would be more than appreciated
 
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/12/2009 10:47 AM (GMT -6)   
Hi Hunter's Mom and welcome to HealingWell. Definitely call you doc and tell him about your pain; there are other things associated with UC/Crohn's such as Ankolysing Spandolitis which causes pain in your joints and your doc should help to relieve some of that pain. Not that this is what you have...but always good to get it checked. Prednisone also made me lose my hair and B-12/Biotin helped with that. Make a list for your doc and tell about the different symptoms you have. I find it helpful to write it out; it's easy to forget when someone is standing in front of me! ;-) Also, you might want to pose the cecal question to the Crohn's forum, they might be better versed with that. Take care, and hope you get some answers soon.
Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/12/2009 7:22 PM (GMT -6)   
When I was on pred and had hair loss, zinc helped me out. But I've also heard of the B12 so it's probably either-or. =)
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

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