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MACGIRL
Regular Member


Date Joined Jul 2009
Total Posts : 90
   Posted 8/12/2009 12:12 PM (GMT -6)   
My son started back to school today. I have been very nervous about it. My worst time of the day is morning and I was afraid I would not be able to get him to school on time. I have to drive him. It is about a 10 minute drive from our house. Only one gas station between home and school and I have to wait through 1 traffic light which always makes me nervous and makes me have cramping.

Usually I stay in the bathroom til about 8:10 a.m. before I start out to work, which starts at 8 a.m. I live about 10 minutes from work now also. Sometimes I still cannot make it to work without having an accident or stopping to go to the bathroom. Luckily my job allows me to be late if I need to be.

I have just been so worried that I couldn't get my son to school on time. But I did. No cramping really. No accidents. YEAH! I hope it continues. He has a new principal this year and she seems really strict. I'm afraid she will punish him for my medical condition making him late for school.


How do you all deal with mornings or your worst times when you have to be at a place at a certain time?
diagnosed 1995 age 19 (was pregnant with son)
currently on
Imuran 200 mg
prednisone 40 mg
levsin 4 .125 mg a day
AMP Floracel 9 capsules a day
Multivitamin
b complex
grape seed extract
PAPA
l-glutamine
flax oil
fish oil


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/12/2009 12:16 PM (GMT -6)   
Hi...you can discuss it with the principal or make other arrangements for your son to be picked up by someone else as to totally avoid that type of stress on you in the mornings.

Truly...you should be on rectal meds...have you tried them in the past?

The other thing is you can add a fibre supplement to bulk the stool a bit.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/12/2009 12:23 PM (GMT -6)   
When it's really bad & you have to leave the house in the AM, take a half-dose of liquid Immodium. It'll buy you about 4 hours of bathroom free relief. I have to head into Boston tomorrow, leave at 8:30ish & it'll take a good 2 hours to get there. Yes, I fully plan to dose up on the Immodium around 7:45! I also make a stop at the bathroom at my daughter's school in the AM- we drive there, takes about 10 minutes, I drop her off, hit the restroom, then head to work, another 15 minutes away. Works out ok- I have had accidents in the past, but theya re few & far between.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/12/2009 12:24 PM (GMT -6)   
If I have to be somewhere by a certain time it is usually worse. I was doing a radio show couple of weeks ago and had to be there by 8 am, alarm didn't go off, woke up later (only two hours instead of three hours before), barely made it in time. Of course I started getting some cramping just as I was about to step out. I usually just try and get up earlier.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/12/2009 12:25 PM (GMT -6)   
I also think you need to talk to the principal so she/he knows what is going on. Also, I know how long I usually take in the mornings so if I have to leave earlier I get up earlier. I also use immodium and or xanax for the super special occasions like job interviews or flying. For your situation I might have used it just to build up my confidence that hey, I can do this. Finally, if the school knows about your difficulties they would probably let you use the bathroom when you get there. That way it wouldn't be as long for you to be away. Do you have to actually get out of the car or can he walk inside himself? I only ask because if you only have to drop him off you could wear an adult diaper and if an accident happen when you were just almost there you could keep going. I have never used one but if no one had to see you I don't think 3 minutes would make a huge difference as gross as it would be.
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/12/2009 12:49 PM (GMT -6)   
I think you've gotten some good advice from the above posters...so all I have to say is Yippee! for making it to your son's school. ;-)
Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/12/2009 2:07 PM (GMT -6)   
I had a similar victory in taking my girls to story hour yesterday. I was so happy, just like you! It certainly is the little things.
It was made possible by two immodiums and an adult diaper.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


MACGIRL
Regular Member


Date Joined Jul 2009
Total Posts : 90
   Posted 8/12/2009 2:46 PM (GMT -6)   
I started back on Canasa this week. I need to add that to my signature. This probably has contributed to my success this morning.

I have taken the Rowasa enemas in the past. I am not sure I could hold them in right now with the flare I am having. Plus they are sooooo expensive and my insurance sucks.
diagnosed 1995 age 19 (was pregnant with son)
currently on
Imuran 200 mg
prednisone 40 mg
levsin 4 .125 mg a day
AMP Floracel 9 capsules a day
Multivitamin
b complex
grape seed extract
PAPA
l-glutamine
flax oil
fish oil


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/12/2009 2:48 PM (GMT -6)   
There are generic versions of Rowasa (usually just called "mesalamine enema") that should be pretty affordable. Even if you can't use a whole one, a half or even a third would help. You could use a canasa after your morning runs to the toilet and the enema at night.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

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