Wow, I haven't experienced anything quite that painful to last that long in my tailbone. I've had in right in the rectum, writhing pain during and somewhat after a bm, and kind of throbbing during the day with definite back discomfort, however.
I wouldn't say it's AS, but it reminds me of the cramping and pains in my lower back and tailbone during periods. I'd take flare pain over that any day...needless to say that it's been bliss for the 16 years without a period (hysterectomy)..lol.
The nerves are very close in that area, I wonder if Robaxacet and antispasmodics would help relieve it if taken on a more regular basis during flares.
Of course, I also suggest rectal meds to help with rectal inflammation.
In saying allll that, could you also have external hemmies? I find them very painful and radiating up into the tailbone area....painful to stand, sit, etc.
Hope you can get some relief.
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!