"butt" pain, but I don't think it's arthritis

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kelli_C
Regular Member


Date Joined Jul 2009
Total Posts : 130
   Posted 8/12/2009 8:50 PM (GMT -6)   
I saw the earlier post about the anklosing spondylitis, and was wondering if anyone else experiences this pain like i have occassionally.  I will do my best to describe it. 
 
Occassionally after having a bowel movement, i will have this deep pain in my rear end.  It seems like it's near the general area of the tailbone, but it seems further info the middle of my body (front-to-back) than the tailbone.  I had a brusied tailbone after my last child was born, so I feel like i know the difference pretty well.  Anyway, the pain is a painfully dull,  throbbing, pain that is short-lasting (about 10-15 minutes long).  It makes it uncomfortable to ly or stand up in any way. 
 
Do you think this pain could be coming from the inflamed tissue in the colon itself? 
Ulcerative Colitis, dx in 1998 at age 18
Rowasa morning and night, Asacol 2x4
Allergic to Sulfasalzine
Now I take no meds or supplements (but some asacol on-hand if I feel a flare-up coming on)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/12/2009 8:53 PM (GMT -6)   
I have gotten that during really severe flares, it's not AS or anything like that, it's actually a pretty common symptom for those with severe enough flares that are occurring in the colon/rectom (from either crohn's or UC).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/12/2009 11:46 PM (GMT -6)   
I'm having the same pain in my tail-bone right now. It lasts for more than an hour after each BM. BTW, I'm flaring.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 8/13/2009 12:19 AM (GMT -6)   
Wow, I haven't experienced anything quite that painful to last that long in my tailbone. I've had in right in the rectum, writhing pain during and somewhat after a bm, and kind of throbbing during the day with definite back discomfort, however.

I wouldn't say it's AS, but it reminds me of the cramping and pains in my lower back and tailbone during periods. I'd take flare pain over that any day...needless to say that it's been bliss for the 16 years without a period (hysterectomy)..lol.

The nerves are very close in that area, I wonder if Robaxacet and antispasmodics would help relieve it if taken on a more regular basis during flares.

Of course, I also suggest rectal meds to help with rectal inflammation.

In saying allll that, could you also have external hemmies? I find them very painful and radiating up into the tailbone area....painful to stand, sit, etc.

Hope you can get some relief.
quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/13/2009 5:41 PM (GMT -6)   
I get this too... I'm not flaring. I just have formed (not even hard, really) BMs now, mostly, and it hurts so bad after. I can't sit, stand, lay on my bed...nothing. It throbs for a long time too.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/13/2009 8:34 PM (GMT -6)   
And I finally understand why enema is not for everyone. I used to tolerate enema very well. But for my recent flare, my rectum is so badly inflamed that I can't tolerate enema at all. Last night, when I tried to squeeze just a bit of Salofalk enema into my rectum, it felt like putting iodine on a wound. I cried out in pain. The pain was even more severe than any abdominal pain I have experienced before/during a BM. And I expelled the enema right away, in tears.

I miss my good old days when I could manage my symptoms by using just enemas. And I'm on Prednisone again recently.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).

Present status: Flaring since July 2009; on 35 mg Prednisone, tapering


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/13/2009 10:19 PM (GMT -6)   
OUCH burnabygirl, I wonder if you might have a bad fissure going on, have you explained all this to your doc? If not, what you're going through right now certainly warrents a visit with your GI.

Feel better soon :)
My bum is broken....there's a big crack down the middle of it! LOL :)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/13/2009 11:04 PM (GMT -6)   
Thanks you, pb4!
I just got the pain for the first time last night and I didn't have a chance to tell my doc about it yet. I have an appointment with a colorectal surgeon who takes care of my hemmies later this month. Surely he will let me know if he finds a fissure. I last saw him in March after he had removed 3 internal hemmies from me by rubber banding. I was fine at that time.
BTW, I do feel better today :)
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).

Present status: Flaring since July 2009; on 35 mg Prednisone, tapering


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/15/2009 8:25 PM (GMT -6)   
Glad you had a better day burnabygirl, I hope you find relief soon, suffering with pain in that area is so difficult and frustrating and exhausting as well.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/15/2009 10:57 PM (GMT -6)   
Guess what? I started to use vitamin E oil on my anus and in my rectum yesterday and I feel much better today. I apply vitamin E oil there after each BM religiously. Today I have no more butt pain during and after a BM and I see less blood.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).

Present status: Flaring since July 2009; on 35 mg Prednisone, tapering


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/16/2009 12:12 AM (GMT -6)   
That's awesome burnabygirl, I often use extra virgin olive oil for relief on my anal skin tags (I acutally use it daily as an all-over body moisturizer, it has healing benefits internally and externally, does wonders for bruises and many other skin conditions.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/17/2009 12:58 PM (GMT -6)   
laura220 said...
I get this too... I'm not flaring. I just have formed (not even hard, really) BMs now, mostly, and it hurts so bad after. I can't sit, stand, lay on my bed...nothing. It throbs for a long time too.
Laura, your anal sphincter could be in spasm and/or you could be suffering from levator ani as this can cause what you are describing...do a google search for levator ani and then another for pelvic floor dysfunction. Try taking a hot 30 min bath right after your next bm as this can help relax the spasms... Unfortunately anti spasmotic meds usually don't help in the rectal area as much as they do with abdominal spasms but a muscle relaxer can offer quite a bit of relief. Btw, most colorectal docs miss levator ani so you may need to mention it to them before they examine you.  This condition can be extremely painful and those with autoimmune diseases like UC are prone to it; the sooner you get it under control the better...there are also excellent results acheived with physical therapy...a good book to read is called A Headache in the Pelvis by Dr Wise.


Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.

Post Edited (bbc) : 8/17/2009 1:56:33 PM (GMT-6)

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