Right now I am weening off the prednisone...down to 15 mgm a day. Yesterday, I felt so terrible, no energy at all. We were vacationing up in PA for the past two weeks in our RV and I was just trying to "hang in there". Today, I told my husband we just had to come home. Of course my GI doctor is on vacation until next Thursday and one of his associates told me that the decrease in prednisone (tapering 5mgm per week) could cause the weakness and NOT the low white count, so he told me if I felt bad over the weekend to increase the prednisone to 30 mgm!!! No way!! I want to get off this stuff.
I've been on Colazal for years, probably immune to it but still take it. I also insert a Cort enema nightly and Canasa in the mornings. My friend swears by flaxseed oil pills, she said it "cured" her UC (but we all know there is no cure). But I am willing to give them a shot too. I take probiotics and fish oil capsules. My problem is ulcerative proctitis.
I have an appointment with a GI doctor over at the Univ of PA hospital but not until the 24th of Sept. ugh.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.