New here - question about Lialda

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klm37
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/14/2009 6:20 PM (GMT -6)   
I was diagnosed in May of 2006 (with crohn's colitis).  Colazal was very successful for me for 3 years - I tapered the doseage down to 4 pills per day.  Then I made the mistake of thinking I could go off entirely.  5 months later, of course, I had my first flare.  Colazal quickly got it under control (the maximum doseage, 9 per day).  However, that was short-lived - about a month ago it stopped working as well.  My GI thought Lialda might work for me.  I have been taking it 8 days (along with a 10 day course of Cipro, which I started Tues this week).  Still miserable.  GI says Lialda could take a few weeks to work; I'm skeptical that I should be seeing improvement in a linear progression if it is actually helping.  This makes no sense, because I've always responded so well to the 5-asa class of meds.  I am scared to death to go any 'higher'.  Does anone have any experience either with Lialda directly, or similar to this?
 
thx

TripleKiss
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 8/14/2009 6:53 PM (GMT -6)   

Hi!  Welcome to the forum! :) 

When I was first diagnosed, I was put on Lialda.  It didn't really seem to have much impact on me at all (in fact, I felt in some ways that it was getting worse).  My doctor thought maybe I wasnt getting ENOUGH of it, so he doubled the dose to 4 pills daily.  I got a lot worse on that dosage and was taken off of it.

I have proctitis (located only at the very end of my colon).  My doctor told me that since Lialda is released throughout the entire colon, that it was causing the upper part (that is not affected) to create secretions and send that through the rest of my colon and also that by the time the medicine reached the affected part that there wasnt enough left to help.

If your UC is further down in your colon, this might be your problem.  OR Lialda just may not be for you!  Not all drugs affect people the same way- keep testing one will eventually help! :)


DX: UC (Proctitis) January 2009 (age 24)
Status: Currently in flare since Aug 2008 without remission
Medications: Prednisone (tapering), Canasa, anticipating Dipentum after round of Prednisone, Flagyl, Cipro, Align (probiotic), Cortisone Enema, Lialda,
Testing the spinach & sunflower diet (so far so good!), and coconut oil (not so good!)
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/14/2009 9:20 PM (GMT -6)   
I have left sided UC that goes all the way down. I've been on Lialda since the beginning -- I started with Asacol. It worked for me and even got me into some sort of remission. However, that remission wasn't strong enough and I crumpled hard and fast after eating BBQ chicken. =/ Kind of funny to say, er-- read, but hey, it happens. I still take Lialda now, but only 2 pills (down from 4) since beginning Imuran in January.

Unfortunately, I can't give a time frame on how long it took to work since I was taking Asacol for 4 months prior to Lialda.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

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