Thank god its over

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SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 8/17/2009 1:34 AM (GMT -6)   
After over 10 years of suffering, I went through one last night of horrible pain. On Monday I woke up in a pain I had never felt before. I was completley incapable of moving at all. My wife called the paramedics.

I was working on getting over a flare up for the past few months, but after 10 years the colitis finally took its toll. My colon had ruptured, and I had to have emergency surgery to have a total colectomy.

Needless to say, it was very scary. It was just yesterday that I was actually becoming coherrent. It looks like its gonna take another week or so to recover from the surgery, but now Im looking forward to all the things I wont have to deal with any more. The meds, the blood, the pain, colon cancer, colonoscopies. Getting used to this ostomy bag isnt gonna be any fun at all. And Im certain that Im no where near finished dealing with the emotions involved with the acceptance of whats happened. Thank god though I have an amazing wife, and some close wonderful friends.

I do know Ive seen a link to the person who knows all about the JPouch surgery. Can anyone link that post/article?

Thanks,
John

quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 8/17/2009 3:03 AM (GMT -6)   
Oh John....bittersweet relief of not having to deal with all you've been through before the ostomy, and I can truly imagine the emotional and physical healing you'll be going though now.

I'm glad to hear the worst is over, and that with the support you have from your wife and friends, you will no doubt handle it with the dignity you did whilst with UC.

I cannot help with the links you request, but I know Sue and others will do so.

I wish you a speedy recovery.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 8/17/2009 5:33 AM (GMT -6)   
Without wishing to belittle what's happened,I'm sure this will be a blessing in disguise for you.There have been many times whilst flaring,that I've wished something would take the decision of having surgery out of my hands.It will obviously take a period of adjustment for you now,but you can at least be assured that the threat of another flare up has been removed from your life.Best wishes for a speedy recovery.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 4 x 500mg 2 x daily.
May '09:Brief flare,brought quickly under control(or so I thought)by good 'ol Pred and using Azathioprine as maintenance.Still flaring,Pred helping again,but soon to be tapered and still problems,so we'll see.....................
"How can I be lost,when I've got nowhere to go?" James Hetfield-Unforgiven III


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/17/2009 5:54 AM (GMT -6)   
I am so glad that you were able to get to the hospital in time. I'm sorry you had to endure such pain but at least now it's over and you can get back to your life. Hang in there and please keep us updated on your condition.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/17/2009 6:43 AM (GMT -6)   
Im glad your ok. I know that if my diet fails I would rather have surgery then be on pred.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/17/2009 7:41 AM (GMT -6)   
John, I'm sorry this had to happen in such an emergency situation for you, but congratulations on no longer having UC!
 
I think the site you're looking for may be this one:
 
 
Good luck with your recovery.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/17/2009 8:32 AM (GMT -6)   
That is probably the worst way to lose a colon but glad to hear that you caught it and had the surgery. Take your time with recovery and make sure in very good health before proceeding with your next surgery. Once you are up on your feet, email me and I can direct you to a great jpouch support meeting in Los Angeles.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/17/2009 10:19 AM (GMT -6)   
Glad to hear that you're starting to recover!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/17/2009 12:50 PM (GMT -6)   
Sorry you had to go through that. Get well, soon!!!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 8/17/2009 2:32 PM (GMT -6)   
So sorry about the pain and emergency surgery.  But no more IBD!!! 

SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 8/17/2009 2:59 PM (GMT -6)   
Thank you all for your kind words. Sounds like Ill be released from the hospital today. So far, so good. I will pop back on to let you all know how the recovery is coming.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/17/2009 3:09 PM (GMT -6)   
God's speed for healing. Are you opting for the second step or are you still going to give it some thought?


Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/17/2009 5:31 PM (GMT -6)   
Wow, you have been through a lot. Take care and all my good thoughts to you for quick healing and feeling better soon.

Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 8/17/2009 6:15 PM (GMT -6)   
Another site with first person stories about their surgeries is http://www.jpouch.net/about-jpouch-dot-net/
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Achieved almost-remission mid October 2008 (rectum still inflamed)

17 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 7/18/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 8/17/2009 7:22 PM (GMT -6)   
Wishing you a speedy recovery.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 8/18/2009 8:03 AM (GMT -6)   
John,
So glad to hear you are doing all right after that horrible experience. Now I pray you will heal fast .
You have been struggling for so long I hope you will feel really well soon.
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