is it just me RANT

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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 8/17/2009 4:55 PM (GMT -6)   
It is 11.15 pm in the uk i have just had my 15th bm of the day and am now going to try and go to bed and sleep which at the momemt is a joke i have had a large glass of wine and a zopiclone which i do not do as a rule in vain hope of getting a few hours i have also put the fan on as i am just so hot all the time i just feel like im on a roller coaster and am heading down fast this flare seems to have come from nowhere i am seeing GI on sept 2 and he want to talk about 6mp which before i thought no but now am not so sure i think what i am trying to say is i just feel so out of control and does anyone else feel the same i have done nothing differant and not changed my diet it is school holidays but they have not been bad i just dont understand what brought this on .
stopped pred about 7 weeks ago maybe it had not completly cleared as is now back wih vengance i hope not.
just needed a little rant i hate hos u/c is just so unpredictable at alwsy seems to be laughing at you just when you sre almost there bam and your back again .
sorry for the long post but just writting it down makes me feel a bit better just make sure i have enough tp
am ment to be getting my hair done tomorrow only with the help of imodium i think more drugs
 
goiing all those times does not seem to shift the pred weight though just my luck sorry for the big moan just feel very down
 
maybe just trying to do to much and just give in to being poorly and not keep pretending that going to the toilet 15+ times a day is ok just thanks for being here and helping throw good and bad times everyone
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 8/18/2009 2:00 AM (GMT -6)   
It's quite disconcerting when flares happen, and you've definitely had a crappy time with yours. You'll never figure out the why, unless you've completely gone off all your other meds as well as the pred? It certainly isn't food.

What meds are you exactly on at this time?

15 times a day is an awful lot, and if I had an appointment such as a hairdressing one, I'd take the imodium as well...just to get through it.

Will you be calling your doc to see if you can get in soon?

Are you taking any fibre supplements or any probiotics as well?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 8/18/2009 6:12 AM (GMT -6)   
Hi have only stopped pred
touch wood today is better than yesterday have had hair done and just going to have something to eat as did not eat anything before did not want to tempt fate so see what happens can not get to see GI before sept could go to dr but i think they would say carry on as you are and wait and see what GI sayshope it is a bit better by friday as we are going on a family trip to London taken kids on train as a treat so fingers crossed
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks

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