Is it just me?

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Tony A
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 8/18/2009 7:48 AM (GMT -6)   
I have been in a flare for roughly 8 months. I have been taking Lialda daily with little to no improvement. I used Colocort 100mg for a month and it seemed to control bleeds a little but as soon as I stopped using it BAM!

I had some 25mg Hydrocortisone Acetate Suppositories left over from a previous flare and they stopped the bleed within 1 day!

Is the reason that this works for proctitis so well is that it doesn't go higher into the colon and it is restricted to the bottom part?

Interesting.....

Thanks,

Thomas
_____________________________________________________________

Quit Smoking January 2007

First flare June 2007 Lasted only about a week

Second flare started in December 2007 and lasted until May 2008 with no treatment

Diagnosed with Ulcerative Colitis by colonoscopy in June

Third flare started in August 2008 and have had it ever since

Currently taking:

6 Colazal per day

Colocort enema at night

30 mg Prednisone


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/18/2009 9:30 AM (GMT -6)   
Yeah, that last portion is hardest to get healed it seems.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/18/2009 1:14 PM (GMT -6)   
     Yes it is...ulcerative proctitis is extremely stubborn.  Seems like it has a mind of its own, scary.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 8/18/2009 1:18 PM (GMT -6)   
are you still on the pred?

Have you not tried any of the 5-ASA enemas?

Oral meds are NOT enough to treat and maintain the rectum inflammation...rectal meds just seem such common sensed, don't you think?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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