Need help figure out what is wrong with me

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JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
   Posted 8/18/2009 11:56 AM (GMT -6)   
Hi Everyone,
I don't know if its my colitis and also my allergies combined that is making me feel sick. Here are all the symptoms.
 
Headache
Acid Reflex
Fatigue
Joint Pain (Especially in my lower legs)
Nausous
Cramping
Lower back pain
 
 
I want to feel better this has been going on for at least 2 weeks :-(
Thanks for reading and any advice or info you can give.
 
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/18/2009 1:08 PM (GMT -6)   
     Sounds like side effects of the Imuran to me.  The GI doctor had me on 100 mgm of 6MP for a month and my white count dropped sharply.  I had the same symptoms as you.  He took me off the 6MP for a two week period (ending this Friday).  I cannot tell you how much better I feel!  I am down to 15 mg of prednisone, take a Cort enema nightly and Canasa in the morning.  My fatigue has lessened drastically the past few days, no headache and I am sleeping better, no joint pain either.  To tell you the truth, I don't think I am even going to go back on the 6MP.  I see a GI specialist, who my regular GI recommended, over at the Univ of PA Hospital on Sept 24th.  Can't wait to see what he has to say.
     If I may add, I increased my probiotic to three per day instead of two and take three fish oil capsules instead of one daily now too.  I also am on six Colazal daily (was taking nine but didn't see any diff in my condition with them either).  I watch what I eat.....no spicy, no greasy, no red meat.  I try to eat baked salmon three to four times a week.  I love it!  I don't want to jinx myself but I THINK I am finally coming out of this flare which started the end of May.  Good luck!!!!  OH....I was taking Benicar for high blood pressure, but for some reason or other my blood pressure, without medicine has decreased to 110/60!!!  I have no idea whether this this due to the fish oil or what.  I did take a Benicar but got very dizzy.  So for the past three days I haven't taken any blood pressure meds but monitor my BP four to five times a day and it stays between 105-115 systolic to 60-70 diastolic.!!!  Go figure.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/18/2009 1:08 PM (GMT -6)   
I would go to the doctor pronto!
Dx 2006 right after the birth of my daughter
Lialda 2 pills a day
Cort-enemas as needed
Canasa as needed
Probiotics Daily
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16712
   Posted 8/18/2009 1:12 PM (GMT -6)   
Could be anything or it could be a combination of things. Anemia caused me terrible fatigue. I always have headaches, they are usally hormonal for me.
 
Go get checked out.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/18/2009 1:15 PM (GMT -6)   
Hi...I would go back to your doctor as well as your allergist.

You should try the rectal meds...yeah, broken record, but could be a good thing for you. I'd suggest the 5ASA retention enemas initially nightly and taper to a maintenance.

I would also suggest you ask the allergy doc (or your GP) to put you on Singulair.

I have a friend who cannot use Imuran and her symptoms with back/leg/feet pain was a biggie.

Have you had allergy testing done?

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
   Posted 8/29/2009 3:05 PM (GMT -6)   
Thanks for all your comment.
I also get all lot of these symptons durring pms.
I do have low vit. D so I've been taking a supplement for that but its 1000 mgs a day I don't know if that is too high.
That was the only issue I had with the blood work.
I've been on the imuran for 4 yrs now at least.
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/29/2009 5:08 PM (GMT -6)   
If your vitamin D is low...you should up the D3 to at least 2000 - 3000 IU daily, then get it checked again at about 4 months.
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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