Got my first prescriptions today, any thoughts guys?

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calm-on-the-outside
Veteran Member


Date Joined Aug 2009
Total Posts : 832
   Posted 8/18/2009 5:20 PM (GMT -6)   
OK, if you didn't see my previous posts, I'm 32, female, had a colonoscopy in July, dx idiopathic colitis (rectum, sigmoid and lower left) per the surgeon. Today I saw my doctor (internal med) and he gave me Asacol 400mg 2 pills, 3 times daily. He said he didn't want to put me on a rectal med b/c he was going to have me go to a GI, which I see for the first time on Aug. 28. He also gave me an antibiotic...b/c I have alot of mucus/pus per the pics on the colonoscopy. Well, I've been taking the probiotic Align for about a week and a half so...is this ok with the antibiotic as well. I meant to ask him that but I was taking in so much info I was a tad overwhelmed.

Also, how long before I will tell a difference with the Asacol, if it is going to work for me?

Thanks for any thoughts or experiences you might share with me!

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/18/2009 5:49 PM (GMT -6)   
Asacol can take a while to work, just because it's possible for the inflammation to be getting better, but not seeing any improvement in symptoms. But I'd say that you should see at least some improvement within two or three weeks. That's also a fairly low dose, as 12 400mg pills per day is the max (I think...I know that's what I was taking).

Go ahead and keep taking the Align, but try to take it as far away from the antibiotic as possible. For example, if you take it once daily, then take the Align with dinner. Or, if you take it three times daily, try to get the last dose in about two hours before bedtime, then take the Align at bedtime.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


PinkBible
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/18/2009 5:53 PM (GMT -6)   
I was diagnosed just a year ago and the asacol worked pretty well. I started off 6 pills a day then had to go up to 9. I didn't start 12 until I started bleeding again. But I did notice an improvement pretty soon.

PinkBible
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/18/2009 5:55 PM (GMT -6)   
Sorry, I realized that sounded not so encouraging. I was fine for about 3 months on the Asacol, then I started having a flare. But I never had any side effects from it :-)

UCisMyTeacher
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 8/18/2009 5:55 PM (GMT -6)   
Is the Asacol your first Tx? Usually, the dosing for active colitis is 12 pills/day of Asacol, with 6 pills being more of a maintenance dosing. You should start to see some improvement from the Asacol, but it may take the rectal meds to help it as well. So, definately would talk to the GI about rectal meds. Hydrocortisone enemas seem to generally work for people, with the goal being retention through the night. Rowasa (5ASA) enemas are another good one.
Not sure why you're taking an antibiotic... Sometimes Colitis is a mis-diagnosed form of infection from c-difficile...is that why? Usually a stool sample will confirm that first. Definately take lots of probiotics will on antibiotics. The most potent form is a product called VSL#3, if you can find it.
Good luck!
Diagnosed in '99 with severe pancolitis at 24 yrs. old. Consultant/Intuitive Coach. Father of Two.
Remission from predisone, azathioprine and asacol.
Went into remission in '01 and stayed for 8 years on 50 mg. azathioprine only.
New flare in May, 09 (had almost forgotten how rough it can be!).

Long journey with alternative treatments - some good, some not. Found that a blend of western drugs and complimentary herbs worked best for me, especially for mild symptoms and maintenance.


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3692
   Posted 8/18/2009 6:21 PM (GMT -6)   
Hi, As I've mentioned elsewhere, I've been taking 16 Asacol a day for 10 or 15 years. Prior to that I was on 12... prior to that, azulphidine. (And various mesalamine enemas, suppositories, and cortisone enemas along the way.)
It's hard for me to remember how long it took to kick in - and when I was first diagnosed I was put on prednisone at the same time, so it would be hard to tell anyway.
I wanted to say - someone's comment about VSL - if you google VSL#3 you come to the company Sigma Tau - they make it. They sell it directly and ship it in a freezer box with ice packs. If you order Mon thru Wed of any week it'll ship the next day, 2nd day Air. And - the shipping is free. (I'm not being a commercial, just sharing the info.)
Good thing the shipping is free, because the product itself is pricey. But I'm taking it and Ultimate Care Floral and find them both worthwhile.
Asacol - 16 pills a day
Metamucil - 2 doses
VSL#3, Ultimate Flora Critical Care
Canasa
Cortenemas (not for much longer I hope!)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/18/2009 7:01 PM (GMT -6)   
I agree, you should probably be on double that dose of Asacol plus mesalamine enemas. And there are a number of good probiotics available, so experiment to see what works for you.

I'm not so sure about the antibiotic. We usually try to avoid those unless we have a proven infection, because they can predispose us to getting an over-infection with clostridium dificil, which is a very nasty little bacteria.

I'm glad you have a GI appointment coming up soon.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16714
   Posted 8/18/2009 8:14 PM (GMT -6)   
Sounds like a low dose to me too. If you don't see improvement, remember that you can increase your dose and add rectal meds. I saw improvement pretty quickly, probably within a week
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/18/2009 8:27 PM (GMT -6)   
I started out at nine pills a day and I saw improvement very quickly.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 8/19/2009 12:15 AM (GMT -6)   
c-o-t-o.....the 6 Asacol daily is a good start, and you should see "some" improvement over the next week or so.

Your GI will hopefully give you rectal meds, although the other doc could have regardless of you seeing the GI next week, but it's not a long while to wait considering you're also on antibiotics.

The align is a great idea.

Keep us posted as to how that appt goes.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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