Best Alternative Treatments?

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UCisMyTeacher
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 8/18/2009 4:42 PM (GMT -6)   
I'm new to this site, and have enjoyed reading the posts and all the helpful info. people are posting. I started a flare in May '09 after being in remission for nearly 8 years. If nothing else, it REALLY has made me appreciate remission and not take it for granted!

As a resource, I'd love people to post to this thread with the best alternative treatments they've found works for them. I should say I have a lot of respect and appreciation for western medicine, as it has been Azathioprine that kept me in remission for so long, and Prednisone that originally got me symptom free. However, side effects are not fun!

On that note, here are my top 5 alternative treatments.
(1) Chinese Herbs - 3 products used in combination seem to work really well for me. They are Atractylodes by Seven Forests (9-12 pills/daily); Picrorrhiza 11 by Seven Forests (9 pills/daily); and Tien-Chi Ginseng by Pine Mountain (9 pills/daily). For those who are familiar with chinese herbs, the first two are addressing the damp/heat condition which is underlying UC, and the last product is specific to stopping bleeding.
(2) 1-2 heaping tablespoons of Slippery Elm Powder in a mixture of 1 oz. liquid chlorophyll and 12 oz. water. Mix VERY well for several minutes and it turns into a spoonable slimey goo. It works wonders. Besides, you get to have green BM for a change of pace!
(3) High dosing EPA-rich fish oil. I've found Metagenics makes a great product that is EPA/DHA ratio of 6:1. I take 4 grams of EPA daily.
(4) If not acutely inflamed, a gentle bulking fiber helps give you a formed stool (flax meal or psyllium husk powder are great)
(5) Since it's not legal medicinally in every state, I'll let you fill in #5 ;-) I've found it works great as an anti-spasmodic, manages pain and reduces inflammation to boot.
Diagnosed in '99 with severe pancolitis at 24 yrs. old. Consultant/Intuitive Coach. Father of Two.
Remission from predisone, azathioprine and asacol.
Went into remission in '01 and stayed for 8 years on 50 mg. azathioprine only.
New flare in May, 09 (had almost forgotten how rough it can be!).

Long journey with alternative treatments - some good, some not. Found that a blend of western drugs and complimentary herbs worked best for me, especially for mild symptoms and maintenance.


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3646
   Posted 8/18/2009 5:29 PM (GMT -6)   
Hi -
I've done western meds for 23, actually 26 years, but I am really trying to use other things to complement.
My GI put me on fiber - Metamucil - soon after diagnosis. So I've taken it daily for decades and notice a turn for the worse when if I skip a day.
I'm taking VSL#3 and Ultimate Flora Critical Care, Flora morning and night, VSL midafternoon.
I'd been doing Slippery Elm and noticed it really helped. I'd bought the liquid drops and dropped them into water. I didn't have as much luck with the capsules. Making tea or whatever... maybe I'll wait until cooler weather for that!
I also drink kefir (no dairy problems) - I'd tried making it but I didn't like the taste, so I buy it at the health food store. And I make yogurt, leaving it to ferment 24 hours to increase the bacteria. I have it usually twice a day (about 3 or 4 oz. per serving.)

I'll look up the Chinese herbs - I like to learn what I can!

I also meditate each morning and find it helps.
Asacol - 16 pills a day
Metamucil - 2 doses
VSL#3, Ultimate Flora Critical Care
Canasa
Cortenemas (not for much longer I hope!)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2009 7:59 PM (GMT -6)   
I myself am actually either allergic or non-responsive to traditional oral RX so I use only supplements and diet alteration and am doing much better (went from 30+ daily bm's with bleeding, lots of lower back pain and mucus, with mostly mush to skinny poop consistancy to 5 or less times a day, fully formed, no bleeding or mucus or back pain)...here's what I use...

bee propolis (1 500mg cap 2x/day)
probiotics (1/day)
omegas 3-6-9 (1 cap 2x/day)
fibre supplements (1 cap every night before bed)
vitamin A (1cap/day)
vitamin C (1cap/day)
chamomile tea daily (bought fresh from tea store, not the store bought manufactured kind)

no more processed foods/beverages, fast-foods, animal fats, caffeine, refined sugar...I also exercise regularly and besides the chamomile tea I drink only water (with the rare occassion of fresh unprocessed juices).


I strongly support probiotics for all IBDers as we tend to have issues with bacterial overgrowth and probiotics daily and indefinitely (flaring or not) are basically essential to us.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/18/2009 9:15 PM (GMT -6)   
I take turmeric and I really like it. I chew two Fiber Choice tablets in the morning and drink a cup of kefir at night (I'm out of both! =o ) I want to try the bee propolis. I'm also on Boswellia but haven't noticed a difference with it. I may start taking it twice a day. Drinking dandelion tea is also helpful.

Oh and number five, I strongly agree. Also works wonders for arthritis. I'm afraid to ask the doctor about it though. She might think I just want it for fun lol


19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2009 11:29 PM (GMT -6)   
Hey elephantpipe, just wanted to let you know that I buy my bee propolis online from puritans pride (500mg caps) their prices are very good, I'm in Canada and it seems to be expensive here and hard to find in caps (could only find granuals) even with the exchange rate and shipping they have good deals cuz usually they have buy one get 2 free and such.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


UCisMyTeacher
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 8/19/2009 9:06 AM (GMT -6)   
Yes...I should have had probiotics in the top 5. I use VSL#3, and notice a lot of folks in this forum do as well. I'm curious, has anyone tried 6 sachets a day of it? That's what it recommends, but i can't imagine how anyone could afford that at about $3/sachet. Also, that would be about 3 trillion organisms daily, which seems like a huge amount.
There is a new type of kefir made in Colorado by Inner-Eco that is made from fresh, green coconut juice and is $11/pint. Each oz. has trillions of organisms, which is astronomical. Nice to have a diary/soy free kefir available though.
Diagnosed in '99 with severe pancolitis at 24 yrs. old. Consultant/Intuitive Coach. Father of Two.
Remission from predisone, azathioprine and asacol.
Went into remission in '01 and stayed for 8 years on 50 mg. azathioprine only.
New flare in May, 09 (had almost forgotten how rough it can be!).

Long journey with alternative treatments - some good, some not. Found that a blend of western drugs and complimentary herbs worked best for me, especially for mild symptoms and maintenance.


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 8/19/2009 12:41 PM (GMT -6)   
Vitamin E enema
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