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sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/18/2009 8:48 PM (GMT -6)   
I have arthritis, it's not osteoarthritis... I'm guessing it's just some inflammatory thing, my rheumatologist didn't give me much in way of information... she just put me on Sulindac which didn't do enough for me, and is also an NSAID, so I just dumped it. I try not to take anything for it other than Tylenol, and I take that so often that it hardly does anything. I will take an ibuprofen only if I can't walk.
 
Sometimes it's really bad, I can't walk (well, I guess I could, but not far and I want to cry--and I have a high pain tolerance). It's usually in my knees, but sometimes it moves to my elbows (sometimes so bad it's really painful to use my arms, which really sucks when you're writing Chinese characters for an hour+).
 
One night on an I-can't-walk night I tried to find the Vicodin I had for my Wisdom teeth but my mom had hidden it from me. But even for my teeth it didn't make much of a difference, just put me to sleep.
 
What do I do??
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/18/2009 9:07 PM (GMT -6)   
I don't really mind meds... but NSAIDS aren't the best things for us and that's all I'd gotten. Also it'd be much more convenient to take something as-needed (and probably better for my body) but that's probably wishful thinking.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/19/2009 8:10 AM (GMT -6)   
I have arthritis too but I am not sure which one yet. It's either OA or RA. Nsaids are not wise for Uc'ers but sometimes you have to choose the lesser of the two evils. One can not be in pain 24/7 and live a normal productive life. I take Celebrex as well BUT I only take it when needed. I can not take it all the time or it gives be more abdominal cramping than normal. One thing I found that works really well is Tylonel Arthritis, not plain Tylonel (that does nothing for me). It has higher mg's then normal Tylonel and it works for 8 hours. Another thing that helps is cortisone injections. This is a good alternative to avoiding Nsaids. It can help relieve the pain for quite a while and as an added bonus, it may help your Uc. I get cortisone injections in my fingers to help with the arthritis pain.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/19/2009 9:42 AM (GMT -6)   
I'm sorry your arthritis is so bad. Maybe you should get another rheumatologist if this one isn't giving any answers. How's your UC? If you're not flaring, you could ask the rheumy to test your SED rate. If it's high, then that might be indicative of RA. RA'ers use Remicade and Humira as well, so it could help your joints and colon.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3648
   Posted 8/19/2009 10:27 AM (GMT -6)   
I've found this discussion fascinating. For the past months my gut hasn't been bad - coming off a medium flare (with some ups and downs) but my hip has been killing me!
I thought it was bursitis and went to an Ortho. They did x rays, an injection for the bursa, sad to come see the Doc himself in a few weeks. So I did. The Do walked in, introduced himself, sat down at the computer screen showing my xrays and announced I had severe osteoarthritis in the hip, etc., etc and would probably be looking at hip replacement within the year - and he added, "Your lower spine's no picnic, either."
No one had ever said the word "arthritis" to me before! And - severe? Surgery?!

I asked if this might be UC related and he said he didn't know. Now I'm wondering if my 2-year bout with Pred years ago brought me through the necrosis-to-osteo-arth. thing. Hmmm.

When I meet my new GI next week I'll ask him - and also ask for the name of another joint person!

The ortho gave me Percocet because I know I can tolerate it - I'm taking a couple a week if it's bad, no more. My Chiro really helped me, did massaging and electro-stim, helped me understand the mechanics of it all and how to help myself better.
Asacol - 16 pills a day
Metamucil - 2 doses
VSL#3, Ultimate Flora Critical Care
Canasa
Cortenemas (not for much longer I hope!)


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/19/2009 4:08 PM (GMT -6)   
I'm not flaring really, I think my birth control is affecting things gut-wise, but this was bad even in full perfect remission. It's not every day. Mostly if I walk way too much or if a storm or rain is coming. But sometimes it will just randomly come.

Red, I took my Sulindac as needed and it just didn't do the trick.

bookworm21, thanks, I'll try to remember that. My uc and arthritis don't seem to coincide really... when I was flaring my joints were fine. But maybe I was just distracted from it lol

songlady, that sucks! Maybe you should invest in some calcium and vitamin d? Also, what is Percocet? I've heard of it (in like, movies about drugs and stuff) but what is it really? Just a painkiller? And if so, what kind?
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3648
   Posted 8/19/2009 4:25 PM (GMT -6)   
Hi ElephantPipe -
Yeah, thanks. I've been taking calcium and D for a little over a year now on the advice of my Gyn (though my bone density test looked fine.) I've tried some glucosamine but wasn't sure it if might have been negatively affecting my gut.
Percocet is an oxycodone/tylenol pill and addictive if one doesn't watch out - so I'm using them sparingly. From threads I've read, it doesn't help everyone, but it does bring my some hours' relief.
Sometimes I've used Tylenol Arthritis (not on the same day as the other - don't want an OD of acetominophen!!)
I know any NSAIDs make me bleed, past experience.
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 8/19/2009 4:34 PM (GMT -6)   
Stay away from NSAIDS, Tylenol Arthritis ROCKS! It really does the trick for me. Hope it helps you too.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Achieved almost-remission mid October 2008 (rectum still inflamed). Having surgery in January 2010.

17 Remicade infusions (6 weeks sched: 1st: 7/21/07; most recent: 7/18/09; Current meds & supplements: Lialda, 4 tabs in the morning; Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Roweasa; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro; Xanax


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/19/2009 9:03 PM (GMT -6)   
I know what you mean about the joint pain not coinciding with UC--I've been in remission since December/January, and my joint pains started February. My rheumy hasn't given me a definite diagnosis yet because my symptoms "aren't bad enough." But I think my joint pain may have been related to low vitamin D since it has gotten better along with a vit D rx. Have you had your vitamin D checked?
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin

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