J-pouch and continued flare-ups

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Luis
New Member


Date Joined May 2008
Total Posts : 9
   Posted 8/19/2009 10:25 AM (GMT -6)   
Life after a j-pouch and still needing to take meds, now also have arthritis
Any one having similar issues?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/19/2009 11:11 AM (GMT -6)   
What problems are you having? What meds are you taking?
I have had my jpouch for 8 years and take no meds; I am fine.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Jen_J
Regular Member


Date Joined Jul 2008
Total Posts : 25
   Posted 8/19/2009 12:00 PM (GMT -6)   
yes, there are some people that still need to take meds (antidiarrheal, antispasmodic, antibiotics, etc.) for various reasons. Try posting your question on j-pouch.org.

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 8/19/2009 12:43 PM (GMT -6)   
I'm so sorry to hear this.  That has to be terribly frustrating to deal with, and I hope you will find some relief.
 
This is one of my fears about having to stop taking meds (as much as I hate being on them and risking the side effects) and go down the surgery path.  Because my GI at one point mentioned inflammation at the ileum and that I might be dealing with a Crohn's/UC combo, I would fear putting myself through surgery only to become more diseased in the small intestine and wind up right back where I started with meds.
 
I'll be thinking and praying for you.
Laura
 
34 years old, stay at home mom of 2 girls, ages 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa temporarily because I took Biaxin for sinuses and started seeing streaks of blood again.
 
Also take multivitamins and milk thistle daily.

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 6:28 PM (GMT -6)
There are a total of 2,973,389 posts in 326,088 threads.
View Active Threads


Who's Online
This forum has 160962 registered members. Please welcome our newest member, Gladioli66.
450 Guest(s), 8 Registered Member(s) are currently online.  Details
Sovereignty, Jerry L., island time, Michael_T, Sr Sailor, SeanL88, FLBeachgal, iPoop