I'm so sorry to hear this. That has to be terribly frustrating to deal with, and I hope you will find some relief.
This is one of my fears about having to stop taking meds (as much as I hate being on them and risking the side effects) and go down the surgery path. Because my GI at one point mentioned inflammation at the ileum and that I might be dealing with a Crohn's/UC combo, I would fear putting myself through surgery only to become more diseased in the small intestine and wind up right back where I started with meds.
I'll be thinking and praying for you.
34 years old, stay at home mom of 2 girls, ages 4 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa temporarily because I took Biaxin for sinuses and started seeing streaks of blood again.
Also take multivitamins and milk thistle daily.