Having j-pouch surgery Sept 11!

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ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/19/2009 10:26 AM (GMT -6)   
i went to my surgeon yesterday with my wife and my mom, and he agreed i need the surgery, we scheduled it for sept 11 of this year. I dont have any anemia at this time, however, am a jehovahs witness and do not accept blood transfusions, so just as a precaution, the dr is having me give myself Epogen injections for 10 days before surgery, it will boost my RBC production..
he said i will be off work for 3 months, i will not go back to work in between the two surgeries, and if all goes well, i will be feeling fine for the baby being born in january!
i am getting laid off from my job, but found out i get to stay till march 26, 2010...just enought time to get this surgery paid for! and i am hoping to get approved for short term disability pay while i am out;
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
starting back on at least one remicade IV to see if i can get some relief next week,
most likely having j-pouch surgery this year, within a couple months, so i can be healthy for my baby, meet with my dr about it august 10!


Luis
New Member


Date Joined May 2008
Total Posts : 9
   Posted 8/19/2009 10:32 AM (GMT -6)   
Best of Luck in your surgery. If the pouch works well you will feel much better. At first, it can be really tough especially while you
await the reversal of the ileostomy. Be patient with yourself. I have a J-pouch, and I was doing much better. I am having some slight problems and have needed to go on some medications, even so, I am still much better off today than I was prior to the surgery. I feel better and I can control my bowel movements. My nurse practitioner has had a J-pouch for 12 years and is doing great. Remember to have faith and really take care of yourself and your pouch after the surgery.

JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 8/19/2009 11:40 AM (GMT -6)   
I hope all goes well for you! Do I recall that you are in Oklahoma? If so, who is your surgeon and what hospital will you use? I live in North Central Oklahoma. You'll have to let us know how it all goes!
Julie

Mom of Son 17 UC dx 07/02, Prednisone 2.5 mg, Lailda 2 am & 2 pm, Azasan 100mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 2.5 mg, Colazal 750mg x 4, 6MP 12.5mg, Iron, Vit/Min., Culturelle


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 8/19/2009 12:18 PM (GMT -6)   
That's great news!! :-)
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/19/2009 12:37 PM (GMT -6)   
yes i live in Coweta, ok, near tulsa, the surgeon is Dr. Craig Johnson with Surgical Associates. ive heard he is the best..
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
starting back on at least one remicade IV to see if i can get some relief next week,
most likely having j-pouch surgery this year, within a couple months, so i can be healthy for my baby, meet with my dr about it august 10!


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 8/19/2009 6:02 PM (GMT -6)   
Good luck, keep us all posted. I am having surgery in January, it works out better for my business to take my time off in the winter, after the holidays. My surgeon says that as long as I start back with smaller dogs (I am a mobile dog groomer) I can expect to be back to work within 4-5 weeks of the first step. If I don't work I don't make money, so taking the time off between surgeries as well just doesn't make sense for me. In fact, if I don't mind the bag too much I may wait awhile longer for take down to as not to inconvenience my clients too quickly. We'll see how it goes and how I feel.

Post all about how you feel and how it's going!!

Meesh
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Achieved almost-remission mid October 2008 (rectum still inflamed). Having surgery in January 2010.

17 Remicade infusions (6 weeks sched: 1st: 7/21/07; most recent: 7/18/09; Current meds & supplements: Lialda, 4 tabs in the morning; Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Roweasa; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro; Xanax


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 8/19/2009 6:45 PM (GMT -6)   
I had complications with the the reversal but apparently only 1% do, lucky me! Even so, the surgery was the best thing I have ever done. Good luck! I am really enjoying my jpouch!!!!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
 
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009
 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/20/2009 7:43 AM (GMT -6)   
Good luck with your surgery. I had my colon removed Oct 20, 2008 and my Jpouch was connected Jan 21, 2009. Be aware that complication can occur and recovery can be much longer than expected. After my first surgery I had a blockage and then became dehydrated. I was in the hospital for 22 days. I was planning to go back to work between surgeries but was unable to. I was off work a total of 7 months. The last few months have been good and I can finally say that it was worth it. Your young age is on your side.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/20/2009 9:18 AM (GMT -6)   
glaciergirl, its good to know you are enjoying it so soon after surgery, that gives me hope! =)

 

oh and if u guys want, i can keep u updated while i am in the hospital...this website helped me make the decision so maybe i can help someone else, you can ask me anything too!


24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009!


Hopingforacure
New Member


Date Joined Jun 2009
Total Posts : 16
   Posted 8/20/2009 9:24 AM (GMT -6)   
Hi! I read about the jpouch surgery a lot on this site and I have a question for you. At what point did you decide to go ahead with the surgery? It seems like such a huge decsion....I have had UC for 12 years now and these last few years have been the worst. I am really curious as to why/when/how people make the choice to have this surgery.

Thanks! and Good Luck!
Jamie : 32 : Female
Diagnosed 12/97
Started SCD this month : 40 mg of prednisone : Rowasa
 
 


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/20/2009 9:38 AM (GMT -6)   
it was pretty quick actually, for the last few years my dr has asked me if i would consider the surgery, but i said no, cause i didnt think i was that bad and it scared me..
i probably would never have decided, but we are having our first child, and i have been thinking alot...one, i miss ALOT of work, which it is protected by FMLA but still its money i dont make, i am tired of just living with the pain everytime i sit down in the restroom...me and my wife were talking and EVERY trip we have gone on together i have been sick in some way, last year i had pneumonia for 2 months and missed work the whole time, and i threw up everything i ate, all related to UC..but the biggest thing is, i want to be healthy for my baby, i dont want to be a sickly dad who is always reserved and wondering when i will flair again;
i am getting a tiny nervous now that its a sure thing and we are just waiting on the day to come, in about 3 weeks...but i am going to stick with my decision, especially hearing how people, including one of my friends say this surgery was the best decision they ever made and they kick themself for not doing it sooner =)
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009!


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/20/2009 9:46 AM (GMT -6)   
I am very happy for you Ruissar! I know you are looking forward to being all fixed up for your new baby. You are going to enjoy it so much. Way to go.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (currently 80 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/20/2009 1:24 PM (GMT -6)   
thanks for all ur support!
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009! soon i will be med-free!


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 8/21/2009 12:23 AM (GMT -6)   
Great news. You sound happy and positive. I am sure things will go smoothly and you will be here after your surgery telling us that you wish you had done it sooner. smilewinkgrin
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/21/2009 8:04 AM (GMT -6)   
Sounds like everything is coming together for you. You can focus on your health, and not even worry about the job! Well, I guess that situation could be better. But everything works out for the best, in my experience. Hopefully by next March the economy will turn around, and you'll be healthy with a new baby, and ready to take on the world.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 8/25/2009 7:10 PM (GMT -6)   
Congratulations! I'm fresh out of surgery #1 of 3 for my j-pouch. I'll have to have the ostomy for 6 months or so instead of the 3 that I was hoping for but I know I'm much better already.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 8/25/2009 11:10 PM (GMT -6)   
ducridr said...
Congratulations! I'm fresh out of surgery #1 of 3 for my j-pouch. I'll have to have the ostomy for 6 months or so instead of the 3 that I was hoping for but I know I'm much better already.

Wow, goodluck to you!! You seem to have such a positive view and you just had surgery the other day. It is people like you who make me realize that if I do need surgery one day, I can handle it and it will only lead me to a better life.


Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

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