Prednisone/ Moon Face/ Trying to Deal

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fredtownfreshman
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/19/2009 6:33 PM (GMT -6)   
Hi, I'm 17 and I was diagnosed with Ulcertive Colitis last year. Recently I've just gotten over a flair up so bad that I needed a blood transfusion. My blood work also indicated an unusually high level of liver enzymes, so I stayed in the hospital for a week being pumped with iv steroids, Lialda, vitamin k shots, and started a hydrocortisone enema. They also put me on 80 mg of Prednisone. Days later I had a liver biopsy in concerns towards the elevated liver enzymes. Now I am feeling the best I've felt in months. Finally not having constant stomach pain, going to the bathroom without bleeding, and finally finally living a normal teenage life. EXCEPT, prednisone side effects are really taking a toll on me. I'm now tapered down to 60 mg a day, and after 2 weeks on this med I'm starting to see my face become poofy. I'm starting college next week and I hate to sound vain, but I feel so ugly; and not only I, but my family and friends are starting to notice it. My little cousins continuously call me poofy face and moony. I've never cried so much in my life. I just hate that with all the other worries a normal teenage girl has I have the lovely side effects of Prednisone to deal with on top of that. Any tips or kind words are welcome because I'm really in need of some support =( And to everyone else on this horrible drug, I'd love to hear your experience as well. Thank you.

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/19/2009 6:53 PM (GMT -6)   

It is a lot - just being 17 is a lot!!  I want to tell you however - one reason you are feeling so great is the prednisone.  AND - the prednisone causes the moonface - just a fact you have to accept.  AND - it will go away.  I took prednisone for 5 months.  Now off for three weeks and already my face is nearly "normal".  Now I am 69 but I didn't like it one bit.   You know as my husband of 48 years said - "it is still you - the same wonderful person I married".  Hang in there and you can tell your family and friends you will be yourself soon!!

Hugs, ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 8/19/2009 7:04 PM (GMT -6)   
Unfortunately there is no cure to moonface while youre on Prednisone. Its quite a lot to get used to but it beats running to the bathroom 30x a day. It'll get better with time and as you taper down, so will the poofiness but ultimately as long as youre on Prednisone, you're going to be moony. Then there is the acne... =(
Male 29yrs old

Currently taking:
Prednisone - 30mg
Asacol - 4800mg
Imuran - 100mg


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/19/2009 7:06 PM (GMT -6)   

Just like to add that my skin got so MUCH better taking prednisone!  NO acne but then I am OLD!  LOL

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


TripleKiss
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 8/19/2009 7:07 PM (GMT -6)   
I cant imagine starting college with UC and being on Pred. on top of it- I really feel for you!!  I am on it right now too and it is definitely a brutal drug. 
 
 You will be off of it soon!  In the meantime one thing that has really helped me is watching my sodium intake like crazy (The moon face comes from water retention- Sodium also causes this water retention).  I stopped salting my food altogether, stopped drinking soda, really watching the salty snacks, etc.  Yes, its tough to cut these things out, but it is a temporary change and might be worth it if the moonface goes away or even lessens!!  I ended up not really getting the moon face, although I do notice it a little bit at night after a long day!
 
Hope this helps.  I'll keep my fingers crossed for you! :)
DX: UC (Proctitis) January 2009 (age 24)
Status: Currently in flare since Aug 2008 without remission
Medications: Prednisone (tapering), Canasa, anticipating Dipentum after round of Prednisone, Flagyl, Cipro, Align (probiotic), Cortisone Enema, Lialda,
Testing the spinach & sunflower diet (so far so good!), and coconut oil (not so good!)
 


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 8/19/2009 7:09 PM (GMT -6)   
Lucky you, initially I was ok on Prednisone but after 3 months I broke out horribly on half of my face. It really made me think about how people with chronic acne feel on a regular basis. When I went into remission for a year, so did the acne and moonface but then the UC came back with a vengeance and now I dont have face acne but severe back and shoulder acne. Oh well hoping to get off the Pred soon and not have to worry about the cosmetic side effects.
Male 29yrs old

Currently taking:
Prednisone - 30mg
Asacol - 4800mg
Imuran - 100mg


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 8/19/2009 7:26 PM (GMT -6)   
{{{Hugs}}} I have a 17 year old son and a 10 year old daughter (who currently happens to have a moon face right now, too). My son's friends know that when he looks like that, it means he's just come through a rough time.

We cope by doing something special, like getting a new hair cut/style or even just changing where you part your hair. Treat yourself to new earrings, necklace or hair accessories, manicure, etc. Experiment with tops with different necklines and figure out what most flatters you and treat yourself a new shirt or two (or 3 or 4...). I find that v-necks tend to slim the face. Maybe you could experiment with make up and play up your eyes a bit or get a knock out lip gloss shade to make you feel special. Then chant to yourself, "this too shall pass, this too shall pass".

I am so sorry you are having to deal with this! It just is not fair!! {{{Extra hugs}}}}
Julie

Mom of Son 17 UC dx 07/02, Prednisone 2.5 mg, Lailda 2 am & 1 pm, Azasan 100mg, folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 2.5 mg, Colazal 750mg x 4, 6MP 12.5mg, Iron, Vit/Min., Culturelle


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 8/19/2009 7:37 PM (GMT -6)   
I think you have had some good suggestions. I physically could not completely stop my intake of certain foods while on pred, but avoiding sodium as much as you possibly can is definitely a good idea. And I really like Julie's idea of getting a new do, or get some clothes that draw attention away from your face as much as is possible for right now. It might make you feel a little better.

I don't think you sound vain. Honestly, I was 33 when I was on pred and it bothered me that I looked so wretched every minute of every day, so I commend you for taking this as well as you are!!

I'm so sorry you have to start college feeling this way. I know how awful looking in the mirror can make you feel when you look this way, and I seriously considered having t-shirts made that said something to the effect of, I don't normally look this way or something. It is rough. But hopefully you will meet some really wonderful friends in whom you can confide and trust, and you can lean on them while you get through this tapering process. (and don't try to rush the process of tapering, no matter how much you want the moon face gone. It would be far worse to taper too fast and end up right where you started on that high dose)

And come here and talk to us. So many of us have been through this and we can help and support you.

Good luck!! I hope the transition to college goes smoothly for you-it really is an exciting time!


Laura
 
34 years old, stay at home mom of 2 girls, ages 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa temporarily because I took Biaxin for sinuses and started seeing streaks of blood again.
 
Also take multivitamins and milk thistle daily.


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 8/19/2009 9:16 PM (GMT -6)   
I feel for you. The last time I was on prednisone it was for 14 months and I vowed never again. I agree that v-neck tops are most flattering. Also, I always felt better about myself if my hair was down and covering part of my face. Pony tails were a big no-no. Also, I realized from photos that when I smiled big my face looked even larger so I took it down a notch. When you are out in public, remember how you looked before prednisone and picture yourself looking that way now. Be confident and know that eventually you'll be looking like the hottie you were before! And the bright side is that when you start deflating, people will constantly tell you how good you look and ask you if you've lost weight. Good luck with college. You are at an exciting place in your life - enjoy it!

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


kcolwell24
Regular Member


Date Joined Aug 2009
Total Posts : 39
   Posted 8/19/2009 9:51 PM (GMT -6)   
I know how you feel. I was on Prednisone as well when I started college and it made me gain weight and also affected my personality. I would get paranoid and upset for no reason and would wake up in the middle of the night with my whole body shaking. I vowed never to take it again then, but right now I wish I was back on it! You just have to think of the positives versus the negatives. I know it has awful side effects, but it is a lot better than being immobilized on your bathroom floor with cramps!

Hopingforacure
New Member


Date Joined Jun 2009
Total Posts : 16
   Posted 8/20/2009 10:32 AM (GMT -6)   
I know exactly how you feel! I have been on 40mg for months now and I look ridiculous....My pharmicist recommended an over the counter diuretic. It doesn't work miracles but helps a bit with the water retention.

Good luck!
Jamie : 32 : Female
Diagnosed 12/97
Started SCD this month : 40 mg of prednisone : Rowasa
 
 


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/20/2009 10:56 AM (GMT -6)   
From one moonface to another: hang in there! I always tell my stylist that I am taking prednisone and ask her to give me a flattering cut for big huge cheeks. Usually she goes for something short and kind of flippy.
I try to focus on how it is only TEMPORARY. I have flared many times while I was in college and it absolutely sucks, so I think the big cheeks are a small price to pay.
That is not to say it isn't ok to feel sad about having what I'm sure is a beautiful face not look how you want it! I think any normal kid would!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (currently 80 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/20/2009 1:04 PM (GMT -6)   
I've never taken pred, but I had such good experiences with Entocort without any of those horrible side effects. ((The only side effects I had were headaches, but I was on it for a year))

Those above have suggested a lot of good things. I hope you feel better soon. =]
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

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