Surgery scheduled Oct 5 but in bad flare!

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Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 8/19/2009 10:10 PM (GMT -6)   
Hi guys,
I have scheduled my j pouch surgery for Oct 5 but am suffering from a bad flare.  I am currently taking 6MP, Prednisone, Lialda, Colocort enemas and Canasa suppositories.  My surgeon wants me to be off of my meds for a minimum of 2 weeks (especially 6MP) - 2months if possible.  I don't know what to do because my surgery is 1 1/2 months away and I am nowhere ready to stop taking my meds.  My urgency/frequency is ridiculous and I have even started up with "accidents" again.  I have an appointment with my GI tomorrow to discuss how I am doing and another with the surgeon next week.  Does anyone know if they will do surgery if I am still in a flare?  Or does anyone have any suggestions on how to get into remission ASAP.  I was thinking about having my doctor admit me to the hospital to do a bowel rest just so that I can try to get off of these meds.  Was anyone that had the j pouch surgery done still on meds, 6MP possibly?  Any input is much appreciated.

broadwind
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 8/20/2009 4:07 AM (GMT -6)   
I dont think it will be a big deal if you are still on 6MP at surgery time. Prednisone might be a problem.

I was on prednisone and just off 6mp for my surgery AND in a really bad flare for 3 months continuously before my surgery. My surgeon told me that being on prednisone was worse than being on 6MP/Azathioprine at surgery time. He didnt really want to operate on more than 10mg of prednisone, but he said 6MP doesnt matter that much.

He told me that being in a flare may probably mean i had to have open surgery rather than laprascopic. When i woke up from getting my colon removed, i had only laprascopic scars only so i was relieved.
Mental:
OCD/Social Anxiety/Generalized Anxiety since 9yrs old - Took 20mg/day Paxil (2002-2008)
Physical:
Ulcerative Colitis - Took lots of meds but they failed, now living without a Large Intestine and liking it!
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/20/2009 7:25 AM (GMT -6)   
Surgeons have told me the same thing- the pred is what they don't want you on for surgery. The other meds aren't such a big deal- aside from the biologics, they don't like any of those to be in your system either. Honestly, I'd just start relying on Immodium, limit my outings as much as possible, eat little, mainly in the form of liquid- smoothies, Ensure, etc. Yes, it'll really suck for a month or so, but there is definitely a light at the end of the tunnel!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/20/2009 7:59 AM (GMT -6)   

When I was on 6 MP the surgeon who was going to do my knee replacement said being on 6 MP caused the possibility of infection to go HIGH!  Prednisone was not a problem.  Hm?

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/20/2009 8:12 AM (GMT -6)   

At the time of my surgery I was on prednisone, 6mp, levsin, levbid, asacol, and nortriptylene.  The surgeon's only request was that I tapered off pred after the first surgery before he would do the second surgery.  I also had sugery with one of the top surgeons in the country.

It's far more important to go into the surgery healthy so I am at a loss why you have been given those instructions?  The idea is that surgery paitents are stable at the time of surgery.  I urge you to either have another discussion with your surgeon or seek another consult with a different surgeon.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/20/2009 8:56 AM (GMT -6)   
yeah i go with sue on this, you wanna be healthy when you are going in.

I was on asacol, 6mp and pred when i went in.
My GI actually told me to wean off the pred and couldnt get my GI one day and called my surgeon because i was worried about all the bleeding and stuff and the surgeon told me to go back ON the pred that it would be better for me to be healthier.
I think the problem with the 6mp is the risk for infection, but it takes like 6months for that stuff to get out of your system, so stopping it 2 weeks before surgery isnt gonna do anything.
Im so glad you are gonna be healthy soon though and you wont have to worry about those meds!
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