turned away from my infusion....

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/20/2009 10:28 AM (GMT -6)   
So I get to the hospital this AM for my Remicade. They get the line in, order the drug, then go to my vitals- my temp was 99.4. Nothing big... I have been feeling "blah" the past few days, headachey & tired, but figured it was just the heat. But they wouldn't do the infusion- luckily they were able to cancel the pharmacy order before they mixed it. I rescheduled for next Tuesday- the nurses told me to take it easy, drink lots of fluids, take Tylenol, & if nothing came up by the wknd I should be fine by then. So off I go- now I'm going to nap, as my daughter is already off at the beach for the day with my sister & her kids. I'm glad, I suppose- last time I felt "blah" for an infusion I wound up with strep pneumonia, in the hospital ICU for 5 days. It makes me think though, how much longer can my poor body maintain on these meds? I mean, how bad can a perm ileo be? Sick of it all! confused
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 8/20/2009 10:43 AM (GMT -6)   
I think I would rather have surgery than worry about every little bug. Hugs!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/20/2009 10:48 AM (GMT -6)   
Oh what a bummer! And to even have the IV in before they call it off! sheesh. I hope you feel better soon. Rest up so you can be a perfect patient next week.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (currently 80 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/20/2009 10:57 AM (GMT -6)   
i agree with you! i am so tired of all the bad effects of the medicine i am on! even worrying about my wife getting pregnant while taking remicade and 6-mp etc...thus my decision...surgery in a couple weeks
24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 8/20/2009 11:09 AM (GMT -6)   
Ouch!  A bummer, indeed.  devil   Hope you'll throw off whatever it is quickly. Pamper yourself! / Old Hat (30 yrs with left-sided UC ... [etc.])

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/20/2009 3:25 PM (GMT -6)   
I've been napping & relaxing, & popping Tylenol sinus every 6 hours! I don't even feel too bad- just my norm...tired! I hate feeling this way- either go ahead & come down with something or be done with it! I better be fine by next Tuesday- thankfully I can take a personal day or sick day from work. I just happened to have today off. It gets old, worrying about every little bug right around infusion time. It's a little ridiculous. I don't know.... I wonder if I shouldn't stop the Remicade & see how it goes on the other meds. And if things go horribly awry, then it'd be that much easier to opt for surgery. I hate having decisions like this- I have a hard enough time trying to decide what to wear each day, or what to cook for supper- never mind a huge, life-altering choice! Help!!!! shocked
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 

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