I had my second Remicade infusion last Friday. All went well it took five and a half hours and was boring just sitting there. I brought my netbook and played on it most of the time as well as my mp3 player to help pass the time. Two treatments down and well I feel a little better and only in the bathroom about 12 times a day now. I still am on the prednisone at 40 down from 60.
My left ankle and foot started swelling up about a week before my second treatment. I mean really swelling up twice the normal size for me. I don’t know if it’s the Prednisone or the Remicade that is causing it to swell. The Prednisone has caused so many problems like sudden mood swings and up all night and just no motivation to do anything. I hope to taper off this stuff real soon, but don’t want to start bleeding again.
This group has helped me pass the early morning hours when everyone else is sound asleep here at the house. I have found encouragement and hope in all the post I have found on here. Everyone is in the same boat as me and well it’s nice to know I am not by myself in this illness.
Hospital November 2006 - UC First flare
ER May 2009 C-Diff
Hospital July 2009 Major Flare
Prednisone 60mg every morning
K-Tab 10 MEQ 4 Daily
Mesalamine 4 Gram/60 ML 1 bottle twice daily
Lisinopril 5 mg 2 daily
Asacol 400MG 4 tablets 3 times daily
Lipitor 20mg 1 daily
Propranolol 80mg 1 twice daily
Omeprazole 20 mg 1 twice daily
Nortriptyline 50mg 1 everynight