2nd Remicade Treatment

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JohnIII
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 8/21/2009 12:27 PM (GMT -6)   
turn  I had my second Remicade infusion last Friday.  All went well it took five and a half hours and was boring just sitting there.  I brought my netbook and played on it most of the time as well as my mp3 player to help pass the time.  Two treatments down and well I feel a little better and only in the bathroom about 12 times a day now. I still am on the prednisone at 40 down from 60.

My left ankle and foot started swelling up about a week before my second treatment. I mean really swelling up twice the normal size for me. I don’t know if it’s the Prednisone or the Remicade that is causing it to swell.  The Prednisone has caused so many problems like sudden mood swings and up all night and just no motivation to do anything. I hope to taper off this stuff real soon, but don’t want to start bleeding again.

This group has helped me pass the early morning hours when everyone else is sound asleep here at the house. I have found encouragement and hope in all the post I have found on here. Everyone is in the same boat as me and well it’s nice to know I am not by myself in this illness.


Hospital November 2006 - UC First flare
ER May 2009 C-Diff
Hospital July 2009 Major Flare
 
Prednisone 60mg every morning
K-Tab 10 MEQ 4 Daily
Mesalamine 4 Gram/60 ML 1 bottle twice daily
Lisinopril 5 mg 2 daily
Asacol 400MG 4 tablets 3 times daily
Lipitor 20mg 1 daily
Propranolol 80mg 1 twice daily
Omeprazole 20 mg 1 twice daily
Nortriptyline 50mg 1 everynight
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/21/2009 3:57 PM (GMT -6)   
     Glad you find some comfort in relating to all of us.  Everyone's case is different.  I don't think there are any two cases of UC exactly alike but we all have similar symptoms.  I have found a lot of useful info by asking questions in this forum.   The people are very helpful and I am grateful I found this site too.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/21/2009 6:51 PM (GMT -6)   
I take a book to read, and big crossword puzzle (that usually takes me a week to finish). But I'm done in about 3 hours (400 dose).

I hope the Remicade starts doing more for you, so you can finally get off the prednisone. I got results immediately. Presnisone is wild stuff, but when you're really bad you can be grateful for it.

Consider maybe it's something else entirely that is causes your ankle to swell? Not everything that happens to us is a side effect from our meds, although it's the first suspect!
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

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