Met with New GI Doc

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 8/22/2009 8:42 AM (GMT -6)   
I met with a new GI doc this past Thursday and my initial thoughts are pretty favorable.  He asked me about my history and what meds I was on.  I didnt have any tests or medical history on paper because I forgot to ask my current GI's nurse to send them so he wants to see me again in 3 weeks so he can make "medical" decisions.
 
The one major thing he noticed was that I was on very low dose of Asacol (2 pills 3 x day).  He thinks that i should defintily double the dosage but in doing so, I would be taking an additional 6 pills a day to an already 20+ a day.  So, he prescribed me Lialda to cut down on the amount of pills I have to take (4 once daily) and actually gave me a free months supply. 
 
He also made me take a prometheus test to see if I'm even metabolizing the 6mp. 
 
My question is, has anyone swithced from Asacol to Lialda and see results?  I know they're essentially the same drug but who knows...
 
Thanks
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/22/2009 9:19 AM (GMT -6)   
I switched from Asacol to Apriso, which is another once-daily mesalamine drug. I LOVE it! I was having trouble remembering my noon dose (even with an alarm on my cell phone, as it seemed I often had nothing to drink with me when it went off) and I know a major reason patients have recurring flares is because of not taking meds, either b/c they forget or b/c they don't want to take them. At any rate, I haven't noticed any problems at all; in fact, I think I'm in a more solid remission since switching. I was often finding whole pills or pills that had split open but still had a lot of medicine in them in my stool when I was on Asacol--I chose Apriso over Lialda as Apriso starts to dissolve at a lower pH than Asacol. I haven't noticed any traces of medicine in my stool since switching.

So, whether my remission seems more solid due to the switch to Apriso, or simply because more time has passed since my flare and my colon is more healed, who knows!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 8/22/2009 9:32 AM (GMT -6)   
Thanks for your response fruit girl.
 
I'm just hoping something puts me in to remission (for a looooonnngggg time).
 
I'm going to start the lialda today!
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/22/2009 12:58 PM (GMT -6)   
You might have some symptoms such as diarrhea from doubling it. I would suggest you up it slower...start with 3 for a week, then go to 4.

You should also be on rectal meds...did he mention anything about that?

Hope this has you feeling better soon.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 8/22/2009 2:03 PM (GMT -6)   
He did mention rectal meds quincy...but I think he said he wants to ease in to things to see what does and doesnt work.
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/22/2009 3:08 PM (GMT -6)   
but, remember your rectum will always be inflamed, and if you see any improvement, you might igmore those symptoms.

As well...you might not really need as high of Lialda as assumed if rectal meds are used.

With PSC..now, this is MY perspective...you want your colon as quiet as possible.

Reconsider the rectal meds....

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 6:05 PM (GMT -6)
There are a total of 2,974,282 posts in 326,164 threads.
View Active Threads


Who's Online
This forum has 161235 registered members. Please welcome our newest member, Elizabeth Weaver.
412 Guest(s), 11 Registered Member(s) are currently online.  Details
goshawk, tarawa, Artist Mark, countess18, Jerry L., Donjr, Sr Sailor, Sara14, FLBeachgal, LJohn23, Jack & Diane